MD wants me to have a shoulder replacement - need help!!
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dmorgan724
- Posts: 9
- Joined: Wed Jul 27, 2011 6:51 pm
- Injury Description, Date, extent, surgical intervention etc: 39 yr old female that has a ROBPI. Live in Alabama. I have had a total of 3 surgeries (1 muscle, 1 lengthening, 1 ulnar nerve).
MD wants me to have a shoulder replacement - need help!!
I have had a right BPI since birth. I'm 40 years old. To make a loooong story short....I have had a total of 3 surgeries on my arm. The 1st surgery was not until I was in my 30's & it was a muscle transfer (mod quad), 2nd surgery was limb lengthening & rotatio, 3rd was ulnar surgery because the Ilizarov Fixator messed up the ulnar nerve. Well, I was doing GREAT...became an RN, etc. In 3/2011 I was walking in the woods & fell..grabbed a tree & pulled my neck & shoulder....had a CT & showeed a cyst on C6 -7. Got to feeling some better. On 12/2/11 I picked up a 25lb bag of cat liter with my BPI arm only & carried it a good ways in the house. Immediately I felt a pull. By the next day I was having trouble moving it. Since last Thursday I have had MRI's, EMG's, saw 3 dr's, & going for a CT tomorrow. The last dr I saw says the MRI states I have some torn muscles & I have dislocated my shoulder. I have no ROM now..in TERRIBLE pain, shoulder is completely dropped...I'm at the end of my ropes. He is wanting to do (if my deltoid can handle it) a compete shoulder replacement & reversal of the muscle transfer surgery. Any thoughts...suggestions? Anyone know of anyone have this done?? Thank u!!!
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: MD wants me to have a shoulder replacement - need help!!
Pleasse excuse, but I am not clear on if any of these Doctors especially the 1 that wants this shoulder surgery were/are BPI SPecialists ? If not I recommend a Consult opinion from a boneified,Cerified BPI Specialist.
"bossy" gramma Carolyn J
LOBPI/73+
"bossy" gramma Carolyn J
LOBPI/73+
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anotherbpimom...
- Posts: 49
- Joined: Thu Mar 05, 2009 1:11 am
Re: MD wants me to have a shoulder replacement - need help!!
Ditto the last response!
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carron
Re: MD wants me to have a shoulder replacement - need help!!
were in alabama do u live. we went to doctors in bham they would not do any thing. but things change in 11 yrs keep looking hope you find some one to help
Last bumped by Anonymous on Sat Apr 19, 2014 7:26 pm.