United Brachial Plexus Network, Inc.

Hello all. After about 12-15 years of uncertainty, needles, scans, putpatient procedures, you all have been there..
I can finally put a name to my conditions. It all now makes so much sense to the exact detail! However, I am mainly working with my primary- who doesn't humiliate me with monthly urine or blood tests for substances I simply do not care for (lots of doubt when you are young yet suffering!! Its ashame and criminal to humiliate people, I am strongly PRO freedom if one chooses that road) My Specialist, Dr. Bryan DeSouza, Neurology, lankenau hospital, has been helpful with the diagnosis. Does anyone know of a good group that will be aware of this misunderstood and complicated condition in Philly)

I hear Jefferson has a unit but I have read that they are a special athletic oriented crew.

Thank You, J

At the top of the page, there is a resources tab with a list of many doctors and their completed surveys regarding the population that they best serve.
Hope that helps,
Amy 24 years old ROBPI from MN