Need some information...suggestions

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
Locked
dmorgan724
Posts: 9
Joined: Wed Jul 27, 2011 6:51 pm
Injury Description, Date, extent, surgical intervention etc: 39 yr old female that has a ROBPI. Live in Alabama. I have had a total of 3 surgeries (1 muscle, 1 lengthening, 1 ulnar nerve).

Need some information...suggestions

Post by dmorgan724 »

I came to ubpn several yrs ago but then just stopped posting. I am 39 from Alabama & have a ROBPI. My past surgeries are a mod quad, limb lengthening/rotation, ulnar nerve repair (because of the lengthening). I credit this site to a lot of my current knowledge.

My question is that my neck & shoulder has been just about to get the best of me. It has always hurt but has been igetting worse. All my surgeries were in Texas & I am in the process of sending my records to the Mayo Clinic in Minnesota....have ANY of you had or known of someone that had good/bad things come from the dr's there??

Any comments or suggestions would be greatly appreciated :)
AngelaW
Posts: 240
Joined: Fri Feb 27, 2009 9:03 pm
Injury Description, Date, extent, surgical intervention etc: X

Re: Need some information...suggestions

Post by AngelaW »

Hello, I'm a TBPI and I have had nothing but excellent care from ALL of the Mayo clinic doctors (that's about half of thr orthopedic section, hahah) but especially the bpi doctors (bishop, spinner, shin, elhassan) They are experts in their field and are easy to work woth personality wise. As far as I know they have an excellent reputation throughout the BPI comunity. If you check out my videos you can see the progression of my treatment I've recieved from there.
Also, if you are planning to come to MN, please consider becoming a participant in an important new study being run by Dr. Bassem Elhassan of the Mayo clinic to gather information on adult OBPI in order to better treat both children and adults with OBPI. I've included links to both the videos and the study.

Good luck,
Ang :)

http://ubpn.org/forum/viewtopic.php?f=17&t=34628

http://ubpn.org/forum/viewtopic.php?f=17&t=35017
AngelaW
Posts: 240
Joined: Fri Feb 27, 2009 9:03 pm
Injury Description, Date, extent, surgical intervention etc: X

Re: Need some information...suggestions

Post by AngelaW »

I think you sent me an email already. Sorry to get redundant, lol. I've been emailing A LOT of new nanes. :)
User avatar
hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:

Re: Need some information...suggestions

Post by hope16_05 »

I have had two very successful surgeries at the Mayo with Dr. Steven Moran, one to regain better hand function and one to resolve my shoulder pain both very successful! I have much better hand function and pain about once a year if I severly over do it.

You can email me if you have specific questions as I am still a little sporatic on this site since having my baby 3 months ago. Hope16_05@yahoo.com

Amy 24 years old ROBPI from MN
Amy 28 years old ROBPI from MN
Locked