....My 40 yr old son is an Adult Survivor of Congenital Rubella Syndrome[German Measles my 1st Trimester of pregnancy]...(many anomalies surgically corrected by age 18). I recently found a web site of information for Adult Survivors of CRS and found a list of late in life onset of medical conditions that are staggering to say the least. I feel moved to share a perspective on survival from one of the members of his Survival Group...it touched me:
"I suppose if we were aborted, we would have not known any different. However, with all its pains and sufferings, it is still worth moments of glory to experience life. We can count our blessings to have seen the world, animal life, people, friends, flowers, sunsets, sun rises, clouds, mountains, the moon and stars and sun. We ought to be thankful even though our lives are not perfect. Dealing with the CRS curve-balls I suppose is what makes us stronger. Keep forging through it all, my friend, and for all others dealing with CRS. "
It appears this Group of Brave Adults live a "Parallel Journey" of new Issues like us OBPI-er's.
HUGGZ Heal,
Carolyn J
LOBPI/72
A TIMELY REMINDER & ANOTHER PERSPECTIVE TO SHARE...
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- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: A TIMELY REMINDER & ANOTHER PERSPECTIVE TO SHARE...
Awesome view on life! Thanks for sharing Carolyn.
Last bumped by Anonymous on Thu May 29, 2014 6:03 am.