Some of you may remember my 3 year old son, Brayden, from Camp. He is the the one that told everyone his name was Buzz LIghtyear! He is having a gracilis muscle transfer in his LOBPI tomorrow at 9:00am at Cincinnati Children's Hospital by Dr. Yakubof. He sure could use your prayers! We have had concerns of canceling because of a slight cold, but everthing seems to be good now, except a runny nose. Instead I got the worse of the cold and I am slowly getting over it, which I guess is a good thing. We are really nervous, and not looking forward to seeing him in alot of pain, but we are hoping this will pay off in the end! I would really appreciate it if you can keep Brayden in your prayers!
Thank You So Much!!
Bridget Mom of Buzz LightYear!
Prayers for "Buzz Lightyear"
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bfaithda
- Posts: 88
- Joined: Fri Jul 20, 2007 10:40 pm
- Injury Description, Date, extent, surgical intervention etc: My name is Bridget, my son Brayden has a LOBPI. He was born 5-14-07 and weighted 11lbs 3ozs and was 22inches long and got stuck on my pelvis coming out. All 5 nerves were involved 2 ruptured and 3 avulsed, and also had Horner's Syndrome. He had primary surgery in St. Louis with Dr. Parks when he was 3 months old. He used synthetic materials to fuse the nerves together, because the nerves in his calves were not long enough. Brayden currently does aqua therapy, PT, OT and speech therapy. He has little movement in his arm and hand, but that does not stop him from having fun and being a normal boy!!!
- Location: Owensboro, KY
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bpiparent
- Posts: 17
- Joined: Mon Jan 24, 2011 2:59 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter born 5/10, avulsion, tearing and stretching, 1st surgery 9/10.
Re: Prayers for "Buzz Lightyear"
I will pray for "Buzz". I hope everything goes well!!!!
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Prayers for "Buzz Lightyear"
"Gramma" Carolyn J is Praying.
HUGS all around,
Carolyn J
LOBPI/72++
HUGS all around,
Carolyn J
LOBPI/72++
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nkjacoby
- Posts: 81
- Joined: Sat Jun 21, 2008 9:06 pm
- Injury Description, Date, extent, surgical intervention etc: Nicholas is 11 years old and his birth was complicated by a severe shoulder dystocia resulting in a severe LOBPI. He has had 5 surgeries to date with very little improvement. His left arm has never fully gained any functional use and has been completely flaccid until his last surgery. It now sits at a more natural position, but he is still unable to use his arm. However, his hand function was never limited until after his most recent surgery and is now completely limited due to an ulnar nerve entrapment. He is getting ready to have his 6th surgery in April to free the ulnar nerve from his last surgery. He is an amazing young man who never gives up on his dreams. He is my HERO!!!
Re: Prayers for "Buzz Lightyear"
I will be keeping you all in my thoughts and prayers. My son had the gracilis muscles transfer to his biceps in 2004 at Children's Hospital Boston. I hope all goes well and that your little one has a speedy recovery.
Mom to Nicholas 11 LOBPI, Dawson 7, and Kalyssa 5
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karategirl1kyu
- Posts: 363
- Joined: Mon Feb 19, 2007 12:59 am
- Injury Description, Date, extent, surgical intervention etc: LOBPI, had surgery when I was 9- they moved muscles and tendons from one side of my arm to the other side. I can lift my arm to about my eye level, can't straigten it all the way and can't completely supinate my wrist.
- Location: Richmond, RI
Re: Prayers for "Buzz Lightyear"
i remember seeing you guys at camp, you have a cute one!! hope everything went well!
~Mel/23/LOBPI
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Prayers for "Buzz Lightyear"
Good luck little buddy! I hope it went well, keep us posted!
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bfaithda
- Posts: 88
- Joined: Fri Jul 20, 2007 10:40 pm
- Injury Description, Date, extent, surgical intervention etc: My name is Bridget, my son Brayden has a LOBPI. He was born 5-14-07 and weighted 11lbs 3ozs and was 22inches long and got stuck on my pelvis coming out. All 5 nerves were involved 2 ruptured and 3 avulsed, and also had Horner's Syndrome. He had primary surgery in St. Louis with Dr. Parks when he was 3 months old. He used synthetic materials to fuse the nerves together, because the nerves in his calves were not long enough. Brayden currently does aqua therapy, PT, OT and speech therapy. He has little movement in his arm and hand, but that does not stop him from having fun and being a normal boy!!!
- Location: Owensboro, KY
Re: Prayers for "Buzz Lightyear"
Thank you for your thoughts and prayers! It has been a very bumpy ride for Brayden. He was in surgery Wednesday for about 6 1/2 to 7 hours. The doctor says that it all went very well and it looks really promising. They anchored the muscle to the clavacle and at the bend of his elbow, and attached it to his bicep to give him some elbow functioning. He had a little rough time with ansthesia making him really nauseous. He finally started to eat yesterday afternoon, and they took his morphine away, but he would not take anything by mouth for pain. He would not let us know he was in pain. He stayed up half the night and moaning and whinning, and he would fall asleep off an on, but for only an hour or 2 at a time. This morning he wanted to use bathroom in the toilet, so I helped him walk to bathroom crying whimpering the entire walk which was understandable. When we got back to the bed he started to get sick again. He went to the bathroom again and afterwards he got sick again, and again after seeting in a chair. He set in the chair for a long time and actually ate little breakfast. Then we tried to sneak oral medicine again, and he got sick again. After a while they went ahead and gave him more moraphine on top of his thoradine(spelling?) and muscle relaxer. He started feeling alot better. We thought maybe the reason he was getting sick or had a bad night, might have been the ansthesia, but after thinking about it reallized he was really in pain last night and this morning. He stayed in constant sweat last night and was really whinny, and this morning how he got sick after each walk just made me think how it has to be pain. He had not taken any medicine by mouth, until this morning and when he did he got sick or just not take it at all. They have been giving tylenol supositories and I am making them give them on a regular basis to keep him from beeing in pain. Since he has been taking them he has been a regular comedian! I had to convince the nurse to give it just a few minutes ago. I told her I am not letting him have a nother night or morning like that one again!
His drain comes out of his leg tomorrow so hopefully we get to go home! He is really ready, and me and my now sick husband are more then ready! Thank you again for all your thoughts and prayers for my little man! He has been so brave and such a trooper! It just blows my mind what these kids can have to go thru and over come!
His drain comes out of his leg tomorrow so hopefully we get to go home! He is really ready, and me and my now sick husband are more then ready! Thank you again for all your thoughts and prayers for my little man! He has been so brave and such a trooper! It just blows my mind what these kids can have to go thru and over come!
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jmar
- Posts: 528
- Joined: Tue Aug 10, 2010 3:43 pm
- Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.
Re: Prayers for "Buzz Lightyear"
great news!! sounds like he did very well.
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karategirl1kyu
- Posts: 363
- Joined: Mon Feb 19, 2007 12:59 am
- Injury Description, Date, extent, surgical intervention etc: LOBPI, had surgery when I was 9- they moved muscles and tendons from one side of my arm to the other side. I can lift my arm to about my eye level, can't straigten it all the way and can't completely supinate my wrist.
- Location: Richmond, RI
Re: Prayers for "Buzz Lightyear"
i think that because of this injury we all have an exceptionally high pain tolerance, he's brave for not saying anything about the pain, and i'm glad to hear he is doing well 
you have a brave little space explorer over there
you have a brave little space explorer over there ~Mel/23/LOBPI