HOW LATE IS TOO LATE?

Treatments, Rehabilitation, and Recovery
ArmStrong
Posts: 100
Joined: Thu Jan 20, 2011 4:09 am
Injury Description, Date, extent, surgical intervention etc: HI BPI FAMILY ON SEPT.19 2010 I CRASHED ON MY MOTORCYCLE AND SUFFERD A FRACTURED BACK AND NECK AND A CLOSED,TRAUMATIC BPI LEFT ARM PARALYZED,SOME FINGER AND WRIST MOVEMENT.
Location: LOS ANGELES,CA

HOW LATE IS TOO LATE?

Post by ArmStrong »

HEY EVERYONE,I'M 4 MONTHS POST ACCIDENT I'M TRYING TO GET SOMETHING,ANYTHING DONE ASAP,I APPLIED FOR MEDI-CAL INSURANCE IN OCTOBER AND AM HAVING A HARD TIME GETTING A RESPONSE FROM THOSE IDIOTS,PLUS I DOUBT THAT THEY WILL COVER ANYTHING REGARDING TBPI SO MY QUESTION IS WHAT IS THE LONGEST ANYONE HAS WENT WITHOUT SURGERY AND HAS ANYONE WHO HAD TO WAIT FOR LONGER THAN 6 MONTHS HAD ANY SUCCESS OR IS IT JUST TOO LATE AFTER THE 3-6 MONTH WINDOW I KEEP HEARING ABOUT?
Master DIVER TOM
Posts: 759
Joined: Tue May 05, 2009 11:51 am

Re: HOW LATE IS TOO LATE?

Post by Master DIVER TOM »

Hi armstrong,

First your doing a great job, Try SSa when you have your records together that will take time to. I hope you do this its worth a try. I never had surgery for my left erbs they never had them for me in the 50s. I am a retired from a being a Chicago city semi driver a Padi Master Diver and 61 retired My left erbs from birth, broke my elbow and scapula to. You will get the treatment you can when you can that all you can do. You can ask where you can get medical treatment ware you live here . I cant help here on this but I have lived with erbs for life . I am on the private board if I can help ;) Tom
jmar
Posts: 528
Joined: Tue Aug 10, 2010 3:43 pm
Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.

Re: HOW LATE IS TOO LATE?

Post by jmar »

armstrong, i am 8 months out and i had to demand an emg. i talked to dr armani's nurse in texas by e-mail. i called on the phone and was told that since i am 8 months out i need an emg asap because my time is extremely short if anything can be done. my window of opportunity is almost gone. i have an on-the-job injury, so i have workers comp. if i didnt have that, i would be sunk. if you would like to call dr armani's office i will get the info for you. good luck
Master DIVER TOM
Posts: 759
Joined: Tue May 05, 2009 11:51 am

Re: HOW LATE IS TOO LATE?

Post by Master DIVER TOM »

If, your on wc you can try for Social security to if you can get both in your state, get your record together and apply at 8 mo ask your lawyer. If you were hurt other wise you need to try for it to, you might get Medicare to at 4 months? I am PTD wc hurt my good arm at work driving semis,get SSD for years.

Tom on Private Board
jmar
Posts: 528
Joined: Tue Aug 10, 2010 3:43 pm
Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.

Re: HOW LATE IS TOO LATE?

Post by jmar »

info for dr armenta. not armani. sorry

Lisa Thompson
Brachial Plexus Coordinator
Art Armenta, MD
713-383-9651

e-mail: info@texasbpi.com
User avatar
hilltopfwb
Posts: 82
Joined: Fri Dec 11, 2009 11:50 am
Injury Description, Date, extent, surgical intervention etc: May 24, 2008 an 88 year old lady did not see me and pulled out while I was riding my 06 HD Street Glide. The accident resulted in 9 broken bones and brain hemorrhaging. The accident's most serious results was two avulsions confirmed in my C6 & C7 vertebrae. In Oct of 08 Dr. Li of Wake Forest University performed nerve transfer lasting around 8 hours in surgery. I have limited use now of my left arm. It took until July of 09 before it moved at all, and now is moving limited. I experience burning pain in my left hand, staying busy helps keep the mind off of burning. I visited the Mayo Clinic May, 2010 and consulted with their brachial plexus team. May 1, 2012, I underwent a muscle transfer at Wake Forest University. This surgery was deemed a success and I have more movement in my arm.
Location: Fuquay Varina NC 27526
Contact:

Re: HOW LATE IS TOO LATE?

Post by hilltopfwb »

Dr. Li of Wake Forest University made it clear to me that the success rate goes down tremendously when you go past 6 months. I think it would be great if you accelerated the process any way that you can. Insurance or not, you are going to have to have someone who understands TBPI look at you. I found I wasted much time with UNC & Duke. I needed a Brachial Plexus surgeon that understood the injury.

the best of luck to you!
jmar
Posts: 528
Joined: Tue Aug 10, 2010 3:43 pm
Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.

Re: HOW LATE IS TOO LATE?

Post by jmar »

my 8 month mark was jan 18. i am having an EMG tommorow, jan 25. i just hope and pray that it is not too late if anything can be done at all.
jesseb
Posts: 8
Joined: Tue Jan 25, 2011 12:11 am
Injury Description, Date, extent, surgical intervention etc: Injured 02/01/04 in snowmobile accident; recently turned 21.
Multiple facial, limb, and rib breaks. Only lasting injury is due to left brachial plexus avulsion of C6, C7, C8 & T1. C5 vertebrae fractured, allowing nerve to remain in tact. No sensation in, and minimal movement and use of left arm, except for phantom nerve pains. Whenever the pain sets in, I try to focus on the fact that God allowed me to live and be thankful He is giving me a second chance..
Two BPI related surgeries at Mayo Clinic-Rochester.
1- Right gracilus muscle transfer connected to left bicep and clavicle, intervated to allow elbow bending. Sural nerves taken from both calves for nerve grafting. Partial tibial nerve graft.
2- Fusion of Left wrist and thumb.
Cartilage removed from wrist and thumb to solidify joints with harvested bone marrow from my hip. This surgery has highly improved the functionality of my left arm.
All proper diagnoses and surgeries performed at Mayo Clinic-Rochester.

Re: HOW LATE IS TOO LATE?

Post by jesseb »

I had a successful gracilis muscle surgery 11 months after my accident. Not ideal, but I previously had no use of my left arm. Now I am able to work full-time, build things using fun power tools, and run with my puppy dog; all things that I thought I would never be able to do. The sooner you act, the more function you will be able to have. In my opinion, Mayo Clinic-Rochester is the best place for you.
Master DIVER TOM
Posts: 759
Joined: Tue May 05, 2009 11:51 am

Re: HOW LATE IS TOO LATE?

Post by Master DIVER TOM »

There is so much reseach information here and question like ware doctors and treatments are here right? It is so very hard when you get injuryies later in life. For me haveing no treatment offerd and being birth erbs was easyier compared to so much need for direction for sure. Last doctor I saw told me LIVE with it kid, I was 13. So new treatment will happen in ones life time-Tom
jmar
Posts: 528
Joined: Tue Aug 10, 2010 3:43 pm
Injury Description, Date, extent, surgical intervention etc: brachial plexus stretch during thoracic outlet syndrome surgery on may 18, 2010.

Re: HOW LATE IS TOO LATE?

Post by jmar »

my EMG showed i have a pinched nerve!!! along with my bpi injury!! i am furious!! think i might postpone my doc appt for tommorow so i can cool down a bit. but i cant do that due to the fact that if i need more surgery, it can't wait any longer. stupid doctor!! i have been begging for an EMG for the past 6 months.
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