It's been awhile since I've posted anything. I'm writing now seeking information or to discuss Peripheral Nerve Stimulator (PNS) implant and/or a Motor Cortex Stimulator (MCS) implant. January 20, 2011 I had PNS implanted. Monday it will be turned on and programed for me.
I had the MCS implanted 9/11/08. It has worked for me sometimes and other times not at all. I now have the rechargeable battery in me.
The PNS was tested on me for about a week. There were signs of my spasms and pain decreasing in length of time. I also found some of my side effects from drugs were decreased or gone. That was a pleasant surprise.
Does anyone have a PNS or PNS & MCS? If yes, please tell me the pluses & minuses. When was it installed? Basically I'd like to know everything your willing to share.
Thank you,
Janelle
Peripheral Nerve Stimulator (PNS) implant
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marlene1959
- Posts: 13
- Joined: Sun Jan 31, 2010 11:34 pm
- Injury Description, Date, extent, surgical intervention etc: Motorcycle Accident-passenger (May 07) RTBPI (avulsion), closed head injury, diminished sight in right eye, Broken neck,wrist,ankle,clavicle, burst T6 (surgical intervention),ribs, fractured facial bones. In coma for 5 weeks, rehab 5 weeks. Back to work 3 1/2 months post accident. Referred to Mayo from Louisville Hand Center. Brachial Plexus Reconstruction at Mayo February 2008. January 2010-showing small signs of nerve activity. Was last seen at Mayo July 2010 and was told I did not HAVE to return unless something changed....am still dealing with the disappointment of being told this. I'm afraid my surgery was performed too late (9 months post accident) to be successful.
- Location: Grayville, IL
Re: Peripheral Nerve Stimulator (PNS) implant
Where did you have the implant done? I have not heard of this procedure and since my surgery at Mayo was unsuccessful I am now looking to see what else may be available. Thanks for posting about this....
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dani_was_here
- Posts: 37
- Joined: Tue Sep 07, 2010 11:11 pm
- Injury Description, Date, extent, surgical intervention etc: Traumatic BPI, June 8, 2008, Nerve graft surgery
- Location: Ontario
Re: Peripheral Nerve Stimulator (PNS) implant
I also had an unsuccessful surgery and would be interested in this procedure. I have never heard of it either and would appreciate any information you could pass along.
Re: Peripheral Nerve Stimulator (PNS) implant
I had the implant done at Brigham and Woman's Hospital, Boston, MA. Dr Edgar Ross from their Pain Mgnt Dept. did the implant. (Dr. Ross, 850 Boylston Street Suite 320 Chestnut Hill, MA, 02467 Phone Number: (617) 732-9060)
I am thrilled with how effective it is. I am still healing and I would say it is 75% effective now. When a spasm starts I use the remote to gradually increase the electrical current. I have stopped spasm that I know were headed toward intense. I have not been able to stop all the spasms but they are decreased in frequency, intensity, and length of time. They think as I heal it will become even more effective.
I do find bending bending down to pick something up creates a reaction from the stimulator. The closet thing I can describe the feeling is it feels like a vibrator in my chest. You know the feeling you get from a chair with a vibrator.
I have a rechargeable battery. I can go every 3 - 4 days before charging it. I charge my Motor Cortex Stimulator every 1 - 2 days. Neither battery is below half when I recharge them. I don't want to spend hours recharging. That is why I recharge at that schedule.
I can honestly say I am so happy this was available to me.
I'm more impressed with the PNS than the MCS.
Feel free to ask me any questions.
Janelle
I am thrilled with how effective it is. I am still healing and I would say it is 75% effective now. When a spasm starts I use the remote to gradually increase the electrical current. I have stopped spasm that I know were headed toward intense. I have not been able to stop all the spasms but they are decreased in frequency, intensity, and length of time. They think as I heal it will become even more effective.
I do find bending bending down to pick something up creates a reaction from the stimulator. The closet thing I can describe the feeling is it feels like a vibrator in my chest. You know the feeling you get from a chair with a vibrator.
I have a rechargeable battery. I can go every 3 - 4 days before charging it. I charge my Motor Cortex Stimulator every 1 - 2 days. Neither battery is below half when I recharge them. I don't want to spend hours recharging. That is why I recharge at that schedule.
I can honestly say I am so happy this was available to me.
I'm more impressed with the PNS than the MCS.Feel free to ask me any questions.
Janelle
Re: Peripheral Nerve Stimulator (PNS) implant
Feb 6
Peripheral Nerve Stimulator 2 ½ week update
I’m very impressed with the PNS implant. My spasms have greatly decreased. I was having low level spasms most of day. Now they are not there or I just don’t notice them. Sever spasms have decreased to 1 – 3 times an evening. The length of time is now a few minutes instead of 10 – 20 or longer. The intensity of my sever spasms has decreased. They’re still intense but I’m not writhing in agony.
I have had the remote up to 9.1, the highest level available. I drop it to 7.9 as the resting level. The only issue I have is the high levels create a vibrating sensation that increases to almost burning. I’ve found my body gets accustom to the vibration allowing me to increase the resting level. My resting level started at 4.3.As I’ve increased my resting level I feel dramatically reduced spasms and pain.
It’s been 2 ½ weeks since the implant. I see Dr. Ross on Feb 18th. I believe he will be pleased with my review of the stimulator. I’ll have a list of things I want to discuss with him. My main question will be about the burning sensation on the high levels. However, my review will be positive. I should be able to resume a more active life as the stimulator continues to give me relief. I finally have something that is providing me relief from my injury.
Peripheral Nerve Stimulator 2 ½ week update
I’m very impressed with the PNS implant. My spasms have greatly decreased. I was having low level spasms most of day. Now they are not there or I just don’t notice them. Sever spasms have decreased to 1 – 3 times an evening. The length of time is now a few minutes instead of 10 – 20 or longer. The intensity of my sever spasms has decreased. They’re still intense but I’m not writhing in agony.
I have had the remote up to 9.1, the highest level available. I drop it to 7.9 as the resting level. The only issue I have is the high levels create a vibrating sensation that increases to almost burning. I’ve found my body gets accustom to the vibration allowing me to increase the resting level. My resting level started at 4.3.As I’ve increased my resting level I feel dramatically reduced spasms and pain.
It’s been 2 ½ weeks since the implant. I see Dr. Ross on Feb 18th. I believe he will be pleased with my review of the stimulator. I’ll have a list of things I want to discuss with him. My main question will be about the burning sensation on the high levels. However, my review will be positive. I should be able to resume a more active life as the stimulator continues to give me relief. I finally have something that is providing me relief from my injury.