United Brachial Plexus Network, Inc.

Hi,

I haven't been on here in quite a while. I used to post under Kaiden'smom, but forgot the password and just re-registered.

Here's a video of my son now at 3 years. We're about to do botox on his pecs & then e-stim on his back for 3 months in therapy.
He's doing really great & has come so far from those first 6 months when there was very little movement. He had the ACR surgery with Dr Kozin at 11 months old.

Just thought I'd share and show the newer moms there is hope.

http://www.youtube.com/watch?v=sPv_Xxia2VA

Meredith

your son is just a little ham. he has done very well. hope he continues to do better every day.

Thank You,Meredith for the update and video of Kaiden. I love it!
Don't stay away too long, Ya'Hear!
"bossy" gramma Carolyn J
LOBPI/72

Kaiden looks a lot like my almost 7-year-old Joshua (ACR at 13 months old). Can you tell me what the botox for his pecs is meant to do? Joshua also has only about 100 degrees abduction.

Kate

Thanks jmar, yes my son loves the camera.

The botox is to weaken the pec which is to tight. While it is weakened, they will do e-stim on his back muscles by his scapula to strength them to and help pull his shoulder back. Not sure what the muscle is called, it's right next to the scapula and is weak. They are hoping to help bring his shoulder back and I think to help him get more over head range. He will go weekly to the OT for E-stim for the 3 months while the pec is weak from the botox.

The other option recomended by Dr Nath was mod quad & a triangle tilt. We couldn't afford to pay for those surgeries & didn't really feel comfortable with doing 2 more surgeries at this point when he's doing as well as he is. The botox was recomended by Dr Kozin & so we are hoping that it will help.

Meredith

inregards to the botox, my son had it done in a 7 month period and it was to much, now he can't straightin his arm, becareful not to do to much