Capsulodesis surgery
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Capsulodesis surgery
Have son 7 years old, BP Injury at birth. Had Mod Quad Surgery at TCH at 4 years of age. Now considering capsulodesis surgery by Dr. Nath. Has anyone had this procedure done and if so what have been results - post surgery recovery experiences - Any help is appreciated.
Re: Capsulodesis surgery
Hi Virginia- my 4 1/2 year old daughter Maia had the caps surgery last December. It corrected her posterior dislocation. We looked at it as a surgery that had to be done to repair a physical issue. The bone was put back in the place and the soft tissue was sewn up. Was it successful? Well it's still holding strong in there so that's as good thing right?
http://www.injurednewborn.com/maia/homepage.html
I have pictures on there in the caps section- so you can see the splint.
If Dr. Nath has suggesteda caps surgery then he thinks that your son's shoulder joint can still be saved. Sometimes the joint is so deformed that he won't do the caps surgery but go straight to the osteotomy.
Is surgery scheduled? If so,when?
I have alot of travel information and other informationon Maia's website (see above link)...there is free medical airfare, hotel discounts, etc.
You can post or email me if you need any assistance with this.
good luck,
francine
http://www.injurednewborn.com/maia/homepage.html
I have pictures on there in the caps section- so you can see the splint.
If Dr. Nath has suggesteda caps surgery then he thinks that your son's shoulder joint can still be saved. Sometimes the joint is so deformed that he won't do the caps surgery but go straight to the osteotomy.
Is surgery scheduled? If so,when?
I have alot of travel information and other informationon Maia's website (see above link)...there is free medical airfare, hotel discounts, etc.
You can post or email me if you need any assistance with this.
good luck,
francine
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Re: Capsulodesis surgery
Francine, thankyou for your reply. I have checked out your web site. Dr. Nath is not sure if the caps will work for my son, he is a very large 7 year old and his joint is pretty deformed. He said we will need to do the osteotomy if the caps doesn't work. Maia's recovery seemed pretty intense, very painful. I remember reading that she lost some function. Has all her pre surg. funct returned? How is she doing now? Does she hold her arm in a natural position now? I am trying to figure out if it's worth putting my son through this not knowing if it's going to work. Our surg. is scheduled for Nov. 6. I think is wonderful how you have created a site where parents can see the process and Maias progress. Thank you, Virginia
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NancyP
Re: Capsulodesis surgery
Virginia,
My daughter was 5 1/2 when she had caps surgery on her left shoulder. She has ended up in a much more natural position, and has become incredibly strong in her shoulder. She is also wearing a clavical collar while she sleeps to help her keep her shoulder back instead of allowing it to slope forward. Kelsey's recovery has not been painful for her. Her therapist has been great with strenght building activities for her. Good luck!
Nancy
My daughter was 5 1/2 when she had caps surgery on her left shoulder. She has ended up in a much more natural position, and has become incredibly strong in her shoulder. She is also wearing a clavical collar while she sleeps to help her keep her shoulder back instead of allowing it to slope forward. Kelsey's recovery has not been painful for her. Her therapist has been great with strenght building activities for her. Good luck!
Nancy
Re: Capsulodesis surgery
Virginia- Maia seems to have a very deep level of pain as compared to many other children who seem to bounce back faster. So one cannot read my journals and think that anything I write is going to happen to your child. Must be a genetic thing because even my eldest child took pain in very deeply and never bounced back fast.
As far as the success of the surgery - the results - although they took a few months to come in - were just spectacular! She lost function because she was injured at her day camp - stretch injury and we are still trying to come back from that. But the caps surgery was a good thing and I'm glad we chose to do it. Of course she was 3 1/2 when we did it so there is a big difference in size and age.
Her arm is staying in good position- not internally rotated like she was when she was dislocated. So I am very glad that we gave her joint the chance to try again to reduce some of the deformity. Dr. Nath has warned us that osteotomy is probably in her future as well.
It's a tough decision you have to make- caps vs. osteo. Ask Nath for more info. Nobody wants to do more surgery than necessary - but caps does give the joint an extra chance at creating some sort of a lip to stay in there whereas osteo pretty much gives up on the joint. But if he doesn't feel confident that caps will work and the percentage of that confidence is really low...then it looks like the choice has been made?
Just keep on talking with him about it until you find some peace in either direction.
big hugs,
why do things have to be so hard!
-francine
As far as the success of the surgery - the results - although they took a few months to come in - were just spectacular! She lost function because she was injured at her day camp - stretch injury and we are still trying to come back from that. But the caps surgery was a good thing and I'm glad we chose to do it. Of course she was 3 1/2 when we did it so there is a big difference in size and age.
Her arm is staying in good position- not internally rotated like she was when she was dislocated. So I am very glad that we gave her joint the chance to try again to reduce some of the deformity. Dr. Nath has warned us that osteotomy is probably in her future as well.
It's a tough decision you have to make- caps vs. osteo. Ask Nath for more info. Nobody wants to do more surgery than necessary - but caps does give the joint an extra chance at creating some sort of a lip to stay in there whereas osteo pretty much gives up on the joint. But if he doesn't feel confident that caps will work and the percentage of that confidence is really low...then it looks like the choice has been made?
Just keep on talking with him about it until you find some peace in either direction.
big hugs,
why do things have to be so hard!
-francine
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Re: Capsulodesis surgery
Nancy,
Thank you for your reply. Has your daughter lost any function due to the caps surg.? Dr. Nath said it is possible to loose some mid-line function. I am concerned at the thought of loosing any function. Could you maybe reply on your daughters benefit of the surg. and anything she may have had to sacrifice.
Also, what helped you make the decision to have the surg.? Did you talk with any other parents that have had it done?...what did they say?
Thank you,
Virginia
Thank you for your reply. Has your daughter lost any function due to the caps surg.? Dr. Nath said it is possible to loose some mid-line function. I am concerned at the thought of loosing any function. Could you maybe reply on your daughters benefit of the surg. and anything she may have had to sacrifice.
Also, what helped you make the decision to have the surg.? Did you talk with any other parents that have had it done?...what did they say?
Thank you,
Virginia