Hello,
We have finally decided to go ahead with surgery for our daughter with Dr. Kozin. She will be admitted into Shriners for her 1st and what we hope to be her last surgery on Tuesday, 8/31. She will be having a Trapezius Transfer (upper). Just curious if anyone else will be there with us or if any one has any useful advise, suggestions or even a story they would like to share. My daughter is more anxious about school starting and the six weeks in the cast then the actual surgery. Anyhow, for those that can and will, please keep our family in prayer during this time.
Thank you,
Tiffany
Surgery w/Kozin 8/31
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tkirkland
- Posts: 55
- Joined: Tue Mar 31, 2009 9:46 am
- Injury Description, Date, extent, surgical intervention etc: My daughter suffered a ROBPI at birth on 10/7/2000. She has had no surgeries as of yet but we are currently seeking surgical intervention. She is a continous source of strength and encouragement for as she absolutely amazing!!!
- Location: Rockland County, New York
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marleneross
- Posts: 37
- Joined: Fri Mar 12, 2010 10:21 am
- Injury Description, Date, extent, surgical intervention etc: Lindsey - ROBPI - 12/15/2009
Re: Surgery w/Kozin 8/31
Good Luck-My thoughts and prayers will be with your family. We will be there on Wendesday the 25th.
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tkirkland
- Posts: 55
- Joined: Tue Mar 31, 2009 9:46 am
- Injury Description, Date, extent, surgical intervention etc: My daughter suffered a ROBPI at birth on 10/7/2000. She has had no surgeries as of yet but we are currently seeking surgical intervention. She is a continous source of strength and encouragement for as she absolutely amazing!!!
- Location: Rockland County, New York
Re: Surgery w/Kozin 8/31
Thanks Marlene! Looks like we will miss on another. Good luck!
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tkirkland
- Posts: 55
- Joined: Tue Mar 31, 2009 9:46 am
- Injury Description, Date, extent, surgical intervention etc: My daughter suffered a ROBPI at birth on 10/7/2000. She has had no surgeries as of yet but we are currently seeking surgical intervention. She is a continous source of strength and encouragement for as she absolutely amazing!!!
- Location: Rockland County, New York
Re: Surgery w/Kozin 8/31
Thanks for sharing with me Louise! This give me alot of hope!
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tkirkland
- Posts: 55
- Joined: Tue Mar 31, 2009 9:46 am
- Injury Description, Date, extent, surgical intervention etc: My daughter suffered a ROBPI at birth on 10/7/2000. She has had no surgeries as of yet but we are currently seeking surgical intervention. She is a continous source of strength and encouragement for as she absolutely amazing!!!
- Location: Rockland County, New York
Re: Surgery w/Kozin 8/31
I previously post that Amaya was having an upper trap transfer. I meant to say LOWER TRAP TRANSFER. I just realized I made the error...
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Surgery w/Kozin 8/31
Louise I am Praying that Miss Elizabeth gets some pain relief and surgery goes well also.
Please post updates for us.
HUgs,
Carolyn J
Please post updates for us.
HUgs,
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI