New and looking to connect!
Posted: Wed Aug 11, 2010 12:39 pm
Wow that kinda sounds like a personal ad. I guess I should start from the beginning.
Hi, My name is Shona. I am the proud Mom to 2 amazing little boys. William, who is going to be 2 in a couple weeks and Benjamin who is 5.5 months. They are more then I ever could have asked for. Ben suffered an OBPI. He was 10lbs 11oz at birth and a series of bad medical decisions made by several doctors caused his injury. When we were released from the hospital 3 days after his birth we were given very little information regarding his situation. We were just told that he was fine and that he suffered "a little nerve damage" and that it happened all the time and would clear up in a few weeks. Luckily someone mentioned a brachial plexus clinic at our local children's hospital. I had to track them down myself and arrange for them to see Ben. There was never any follow up from the hospital where he was born.
We live in Toronto, Ontario, Canada and are being seen at Sick Children's hospital. They have a Brachial Plexus Clinic and see roughly 70 children a year with this injury. At our last appointment I was told I should bring my husband with me to our next appointment because we were at the point where we needed to discuss our surgical options. We are going in for that appointment on the 25th of August. I have felt ill ever since surgery was mentioned. What happened to "It's nothing, he'll be fine in a few weeks" I like that answer so much better then what we are facing now. Aside from our hospital visits every 6 weeks we have been taking Ben to a reflexologist once a week. The doctor we see at the hospital says this is a waste of our resources but he seemed to start improving when we started seeing her. He started acknowledging his left side and seemed more comfortable with us touching and manipulating his arm.
In terms of movement, Ben has always been able to move his fingers. In the last 5 months he has developed movement in all his joints. He has some ROM issues and I think the primary concern is his strength. When laying down he has pretty good movement. He even sleeps with his arms over his head. He can suck both thumbs. When sitting up he uses his right hand to support the left a lot and can't seem to move it up to his face very well. In our last 2 appointments he seems to have stopped making progress according to the hospital's movement scale. I do see subtle changes at home.
As parents right now my husband and I are going through a huge range of emotions. We are angry and terrified. We are confused and unsure of who to trust. We don't know what the future holds for our son and are looking to connect with other parents who are going through the same thing or people who have been through it.
Please feel free to connect with me here or on Facebook. You can find me under Shoonieb
Hi, My name is Shona. I am the proud Mom to 2 amazing little boys. William, who is going to be 2 in a couple weeks and Benjamin who is 5.5 months. They are more then I ever could have asked for. Ben suffered an OBPI. He was 10lbs 11oz at birth and a series of bad medical decisions made by several doctors caused his injury. When we were released from the hospital 3 days after his birth we were given very little information regarding his situation. We were just told that he was fine and that he suffered "a little nerve damage" and that it happened all the time and would clear up in a few weeks. Luckily someone mentioned a brachial plexus clinic at our local children's hospital. I had to track them down myself and arrange for them to see Ben. There was never any follow up from the hospital where he was born.
We live in Toronto, Ontario, Canada and are being seen at Sick Children's hospital. They have a Brachial Plexus Clinic and see roughly 70 children a year with this injury. At our last appointment I was told I should bring my husband with me to our next appointment because we were at the point where we needed to discuss our surgical options. We are going in for that appointment on the 25th of August. I have felt ill ever since surgery was mentioned. What happened to "It's nothing, he'll be fine in a few weeks" I like that answer so much better then what we are facing now. Aside from our hospital visits every 6 weeks we have been taking Ben to a reflexologist once a week. The doctor we see at the hospital says this is a waste of our resources but he seemed to start improving when we started seeing her. He started acknowledging his left side and seemed more comfortable with us touching and manipulating his arm.
In terms of movement, Ben has always been able to move his fingers. In the last 5 months he has developed movement in all his joints. He has some ROM issues and I think the primary concern is his strength. When laying down he has pretty good movement. He even sleeps with his arms over his head. He can suck both thumbs. When sitting up he uses his right hand to support the left a lot and can't seem to move it up to his face very well. In our last 2 appointments he seems to have stopped making progress according to the hospital's movement scale. I do see subtle changes at home.
As parents right now my husband and I are going through a huge range of emotions. We are angry and terrified. We are confused and unsure of who to trust. We don't know what the future holds for our son and are looking to connect with other parents who are going through the same thing or people who have been through it.
Please feel free to connect with me here or on Facebook. You can find me under Shoonieb