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Need advice from BTDT

Posted: Tue Jul 27, 2010 7:48 pm
by shoonieb
Hi my name is Shona,
I guess I am writing on behalf of my son Benjamin. He is 5 months old and was diagnosed with a OBPI at birth. He is being treated at Sick Children's Hospital in Toronto Canada. We have recently been told that they are recommending surgery. I am very torn in terms of what to do. I was hoping that some of you would be willing to share your experiences with me both from the perspective of having had the surgery as well as not having had surgery. I really appreciate any advice as I am devastated at having to make this difficult decision for someone who can not express his feelings on the matter.