United Brachial Plexus Network, Inc.

I am looking to make a conection with someone in Upstate NY who has had a child with a Brachial Plexus injury. My daughter Lindsey was born on 12/15/2009 with Erb's Palsey, we are currently travel between Albany and Shriners in Philladelphia for treatment along with weekly physical therepy. We are also having to deal with Tortocollis.

Pia Stampe is a PT up in Rochester. email her at pia@rochester.rr.com

Pia may have a list of folks in that area? Best to ask her..... she works primarily with kids with bpi.

-francine

WELCOME MARLENE to our UBPN Family of Caring, Informed,Experienced and Supportive Parents, adults with OBPI, aka Erb's Palsy, as well as persons with TBPI.
There is no such thing as a dumb question and everyone is welcome on any Forum board. We all continue to learn from each other.

Carolyn J/71

I live in rochester NY and Pia worked with my daughter while she was in Early intervention. My daughter is 7 now and I welcome anyone who wants to contact me regarding BPI.

Thank you all for your reasponse. We are currently working with a few groups to find someone in the NY capital District dealling with BPI.

Jmarcellus- Are you registered with NY Parent to Parent? They were trying to find a family for us, they came up with a parent in Rochester with a 7 year old daughter with OBPI who has had one surgery? Is this you by any chance?

I've sent you a private message.

Tanya in NY
Amber's Mom, ROBPI, 7 years old

Hey There We live in Ballston Spa..our son who is almost 10 yrs old now has a severe bpi We have been to Texas and back...twice. Now we see Dr Waters in Boston on a regular basis. (He is the greatest doc). We do not see any Dr. locally for his injury. If you would like to talk or need advice please contact me.

I live in Fleischmanns, New York, my son who is 6 years old, has had two surgeries.