Injury Description, Date, extent, surgical intervention etc: Injured during forceps birth in 1973, believe injury to be Klumpke's, no surgical intervention to date
My name is Meghan. I was injured during a forceps birth in 1973 and over the years had seen several different doctors to try to understand what was wrong with my right hand and what, if anything, could be done. I've never been formally 'diagnosed' and only seen as an 'interesting neurological case'. I just recently decided to do research again on my own for the first time in almost 10 years thinking maybe 'modern medicine' had made a new discovery and what I found was a description of Klumpke's Palsy that articulated my symptoms exactly. Clearly I have not been to the most educated doctors! I've not ever met anyone with similar symptoms and was nervous and excited at the same time to learn of the UBPN. Thank you for being here and participating in this online forum - for the first time, I don't feel alone in the day to day struggles or like an unsolved mystery!
Injury Description, Date, extent, surgical intervention etc: LOBPI no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth 1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey". There is NO SUCH THING AS A DUMB QUESTION. Sharing helps to Heal. HUGS do too.
WELCOME, Meghan!!! There is no such thing as a dumb question anywhere on any Forum board . Everyone is welcome on any of the Forum Boards.
I hope you can come to CAMP 2010 in MO. in October. It is sooo healing to talk to other adults and learn sooo much while having fun with people who instantly understand. watch for information coming soon how to register.
Carolyn J/ age 71
Last edited by Carolyn J on Tue Mar 09, 2010 10:02 pm, edited 1 time in total.
Welcome to the message boards. You will find alot of information thru out this site. We all know how you feel. Most of us thought that we were all alone with this injury. It is a club that we did not ask to join. Ask any questions. We are there for you.....
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Welcome to our "CLUB" we all understand how nervous you are at this time. It's so strange to be able to talk to others who fully understand. BPI injuries are like fingerprints no two are exactly alike. Each of us healed in different ways even though the same nerves are injured. Please feel free to ask any questions you may have. Someone is always willing to help and share information. Kath
Injury Description, Date, extent, surgical intervention etc: LOBPI, had surgery when I was 9- they moved muscles and tendons from one side of my arm to the other side. I can lift my arm to about my eye level, can't straigten it all the way and can't completely supinate my wrist.
