United Brachial Plexus Network, Inc.

Hello UBP'ers. Some of you may know me from other posts. Our daughter Lily had twonerve transfers two weeks ago. She seems to be in pain some days. She did just cut her bottom teeth, so Im sure she had some pain there, but her teeth came through and she still seems to be in pain, tonight especially.
How has your childern reacted to their surgeries? Lily definately seems different after the surgery, but she changes from week to week also. It's hard to tell whats going on. I am also interested in how much pain older childern handle the injuries, is some form of pain normal for all BPI kids?

Thanks, Andy

I can't say for sure about pain from primary, but I do know that as nerves reconnect there will be neuropathic pain/sensations that occur.

I had surgery at age 14 and I was in quite a bit of pain for the first 3-4 days (tendon transfer) and it lessened over the next 10 days or so.

As far as pain throughout my childhood/teens, I did not have pain unless I overdid something and ended up with muscle strain.

As an adult (I am 34 now) I do have joint pain in my obpi shoulder and have had muscle strain in mu upper traps on the right side from compensation. For me the pain is not there every day, but I do have days where I have overdone using my obpi or "good" side and have pain for 2-3 days straight.

We are all different of course, and some of us have had pain as teens/young adults.

I wish your daughter the best possible recovery!

Thanks Marieke,
I had a suspiscion that as the "new" nerves grow into each other, she may be feeling either pain or sensation. On a good note if thats what shes feeling it means the nerves are connected and primary may be succesfull!

Yep , Marieke is right on as usual!!

I am sooooo happy for dear Lilly. Please keep us updated so we all can cheer good milestones,Andy. YOU ROCK!!!
Hugs,
"Gramma" Carolyn J
LOBPI/71