United Brachial Plexus Network, Inc.

We were recently down in Houston for my daughter's 3rd surgery. We met Stephanie and Grant from Oregon. I was telling them about a program that helps families who cannot afford everything. It is called Children's Special Health Care Management (CSHCM). It is state funded and they really help us out with our expenses. They help with airplane tickets, lodging, transportation. They will also help with the surgery bills if our insurance doesn't pick up everything. They also help people with no insurance. The doctor who heads this up in Michigan is Dr. Scheurer. She is the nicest person. Her phone number is (517)335-8983. I know this is a huge help for us, and hopefully she can direct people into the right direction for your states. I hope all states have this help for people. If anyone has any questions my personal e-mail address is marano73@yahoo.com. Please feel free to contact me. I will answer all messages.

Adam

Hi I will like to get more information about your daughter third surgery. What kind of surgery they did to your daughter? Our daughter will have a third surgery too. They will transfer muscle and tendons to fix the wrist and fingers. Thanks,
Jose and Ivelisse Morales

Adam, thank you very much for posting this info. Even if people live in different states, it can at least give them an idea of what might be available to them. I know that we have some options available to us. We haven't had to use them yet b/c the insurance has extended benefits and helped cover travel expenses to TX. However, we will not have this insurance co. as an option next year and I know that whatever co. we end up with won't have as good of benefits. It was "too good to be true," but I did enjoy it while it lasted. So, I guess we'll start tapping into some resources next year if all goes well. I have found that no one seems to willingly volunteer this info. and you really have to do your own research and advocate for your child to findout what's available to him/her. Anyway, thanks again for sharing this info. -Tina

Adam,
Thank you for researching and posting this information. I hope it will be helpful for many families. Hope all is well with little Alexandra. Happy Thanksgiving to you and your family.
Stephanie & Grant

Hello,
I hope you had a great Thanksgiving! Alexandra's third surgery was the cutting of 4 tendons underneath her armpit area. The second surgery was cleaning the scar tissue and checking the nerves. It was supposed to be a C7 transfer, but we decided not to go that route. Please give me more info about your child's third surgery. This may be a direction that we have to go, and I want to be as prepared as I can for it.

Thank you,
Adam

HI

YOU COULD GET MORE INFO ABOUT US HERE ON THE GENERAL MESSAGE BOARD UNDER THE SUBJECT: HAND AND WRIST SURGERY (MUSCLE AND TENDONS TRANSFER). WE WILL MEET THE SURGEON PERFORMING JOCELISSE'S SURGERY NEXT TUESDAY. HIS NAME IS MICHAEL KLEBUC HE WORK WITH DR. SHENAK. THE TWO PREVIOUS SURGERIES WAS PERFORMED BY DR. NATH. THANKS,

JOCELISSE'S PARENTS