United Brachial Plexus Network, Inc.

Most of the "old timers" know our story. Rosalynn is my almost 9 yr old with LOBPI. iuse to be a egular on the boards until our youngest was born. Dagny has complex heart defects, trach and is on a ventilator at home. Had to quit my job to stay home and take care of her. Since I am not working we have done some major downsizing so we don't have internetat home and I can't get on the board frequently as I used to. Rosalynn is in the hospital right now. She has malrotation of the intestine like Dagny did. We are waiting for them to determine if she is going to need surgery. For those of youthat pray we could use all of them we can get. It seems so unfair. She has been such a trooper with all she has gone through with her BPI, major life changes with the needs of her sister and this on top of it just seems like toooooo much. We are also going to have to get my middle daughter tested to see if she has malrotation as well. The Lord gives us strength and is not suppose to give us more than we can hadle, but right now I would really like to be a 98 lb weekling and not have to deal with all this. Thanks for leting me vent.

Cara,
I am so sorry your kids are going through all this and that you have to deal with it. It sounds like a lot for any one family to deal with, don't worry about venting!

I will be thinking about your kiddos!

Marieke 33, LOBPI

You all, Dagny & Rosalynn are in my "Forever Prayer LIst".
Tell Rosaynn I know she is as Brave as Dagny has been because all BPI-ers ARE BRAVE.

Gramma Carolyn J

Cara, And all MOMS, feel free to VENT here anytime!!! We are here for you.


Message was edited by: Carolyn J

Please tell Roasalyn she is in my prayers. Dagny has been for a very long time.

Sometimes we can't seem to pray for ourselves. That is when we reach out and ask our friends to pray for us. Try to take care of your self a little.

Praying for you and the girls
Kath robpi/adult 69