New Here and Need immediate help!!! PLEASE
Posted: Sat Sep 26, 2009 12:25 pm
Hi I am new to this website and i need some immediate assistance.
My daughter Kaitlyn will be 4 on October 10 of this year and she was born with a brachial plexus injury. Our pediatrician referred us to a neurologist and he recomended OT and when she started to improve slightly he told me that there was nothing more he could do for me and discharged her. So i went the Childrens Medical Center in Dallas to another neurologist when she was 2 and he said that she will never be 100 % but there was nothing he could do and he recomended therapy until she was 3. I wasn't pleased with this information so I did some research not knowing anything about Erb's Palsy or Brachial Plexus injuries and I came across Texas Children's Hospital in Houston. Well not knowing any different i called trying to get in to a neurologist and when they asked what the condition was, i told them and they said that they had a specific Dr at TCH that specialized in mainly Brachial Plexus injuries.
the next month i drove 5 hours from Dallas to Houston and saw Dr. Gharboui. the first visit i was pleased with he informed me that there was a long road ahead but he didn't want to do surgery on her because she was slowly making progress and also told me that i was not doing enough therapy at home. So he recommended extensive OT and would see her in 3 months. To make a long story short i have been there 4 or 5 times and it has been the same response all times, "i'm not doing enough exercises and she's not getting any better see you in 3 months."
Well she was supposed to have a checkup on Sept 24 but due to uncontrolable circumstances i called on the 23rd and had to cancel her appt and was informed that he would no longer be seeing patients there after Oct 1st and he would refer me to someone else. I was NOT happy about this news and have been stressing ever since.
my mom googled yesterday on brachial plexus injuries and came across and article in the houston chronicle talking about how the clinic new they were closing since June and it mentioned Dr. Nath's name as a specialist. I have an appt scheduled with Dr. Nath in Houston on Oct 28th but I would really like to find someone a little closer to Dallas. Also my mom sent an email to someone and he also gave the name of Dr. Marybeth Ezaki at Scottish Rite hospital in Dallas.
I am tired of getting sent from Dr. to Dr. to Dr. and getting no response as to what needs to happen. My daughter has stopped progressing and i am desparately looking for someone to help me. We have been told that surgery is not necessary but everything that i have read in the last 3 days says otherwise. Can someone please give me some kind of advice on who would be the best suitable Dr. for my child and not give me the run around.
Thanks for reading and i look forward to your responses.
sorry so lengthy.
Ashley Scott
Dallas,TX
My daughter Kaitlyn will be 4 on October 10 of this year and she was born with a brachial plexus injury. Our pediatrician referred us to a neurologist and he recomended OT and when she started to improve slightly he told me that there was nothing more he could do for me and discharged her. So i went the Childrens Medical Center in Dallas to another neurologist when she was 2 and he said that she will never be 100 % but there was nothing he could do and he recomended therapy until she was 3. I wasn't pleased with this information so I did some research not knowing anything about Erb's Palsy or Brachial Plexus injuries and I came across Texas Children's Hospital in Houston. Well not knowing any different i called trying to get in to a neurologist and when they asked what the condition was, i told them and they said that they had a specific Dr at TCH that specialized in mainly Brachial Plexus injuries.
the next month i drove 5 hours from Dallas to Houston and saw Dr. Gharboui. the first visit i was pleased with he informed me that there was a long road ahead but he didn't want to do surgery on her because she was slowly making progress and also told me that i was not doing enough therapy at home. So he recommended extensive OT and would see her in 3 months. To make a long story short i have been there 4 or 5 times and it has been the same response all times, "i'm not doing enough exercises and she's not getting any better see you in 3 months."
Well she was supposed to have a checkup on Sept 24 but due to uncontrolable circumstances i called on the 23rd and had to cancel her appt and was informed that he would no longer be seeing patients there after Oct 1st and he would refer me to someone else. I was NOT happy about this news and have been stressing ever since.
my mom googled yesterday on brachial plexus injuries and came across and article in the houston chronicle talking about how the clinic new they were closing since June and it mentioned Dr. Nath's name as a specialist. I have an appt scheduled with Dr. Nath in Houston on Oct 28th but I would really like to find someone a little closer to Dallas. Also my mom sent an email to someone and he also gave the name of Dr. Marybeth Ezaki at Scottish Rite hospital in Dallas.
I am tired of getting sent from Dr. to Dr. to Dr. and getting no response as to what needs to happen. My daughter has stopped progressing and i am desparately looking for someone to help me. We have been told that surgery is not necessary but everything that i have read in the last 3 days says otherwise. Can someone please give me some kind of advice on who would be the best suitable Dr. for my child and not give me the run around.
Thanks for reading and i look forward to your responses.
sorry so lengthy.
Ashley Scott
Dallas,TX