United Brachial Plexus Network, Inc.

Kiman,
FYI you might get more response to your questions about your daughter if you copy & paste your post onto the "GENERAL FORum message board as more mothers go there than on this one...timewise, some mom's only go to one message board, the "Genral Forum" one. HOWEVER, you,EVERYONE, is welcome on ANY Message Forum Board.

Good Luck with you daughter's surgery.
Carolyn J
LOBPI adult

My daughter is scheduled for Sept. 1st to have surgery by Dr. Nath. She was born with ROBPI. The pediatrician caught it on day two, and she started therapy after a week old. She conitnued up to a year old, then I had my second child. I continued therapy at home all the time even when she was going to therapy three times a week. We are very blessed b/c she has really ragained a lot of function. She still cannot raise her arm above shoulder level, no external rotation, no behind the back movement, arm is shorter due to elbow not extending all the way, and her scapula is winged. I graduated in Kinesiolgy with a Minor in Exercise Science. So I have the knowledge background. I feel comfortable dealing with her. I have never treated her any different than my son and she knows that she has no limitations. I teach her that she can do anything she puts her mind to, it just might take some imagination! Her surgery will be Dr. Nath's MODQUAD procedure. I am getting anxious about it. I have heard great things, but am just wondering if it is the right thing for her. I read other posts about situations that are much worse than hers, and wonder if she will benefit from doing this procedure? Is it worth her to go through the long haul of recovery after the fact? Has anyone had this procedure?