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Amazing Udate

Posted: Mon Aug 10, 2009 3:04 pm
by Cole's Mommy
Cole and I returned from Philly on Friday. Cole had another round of botox to his internal rotators, with no casting this time. (Last year with cast).

I was not certain what to expect after the botox shots...but what we are seeing now is absolutely unbelievable. Before this second round, Cole was definitely functional and still making gains. I always celebrate what he has, but could always see where some movements were not easy or possible.

NOW, I look so hard with my Mamma eyes and I am AMAZED at what I see! He scratches the back of his neck with ease, he has passed the"cookie test", he has completely supinated to look at his "dirty" hand, and when he asks, "where'd gramma go?", his right arm looks just like lefty. Needless to say, I am in awe!

Of course I still am uncertain of what will come or go, but you know that celebrating is sooooooo important!

We begin therapy again 2x a week. I will keep you informed.

I just wanted to share my joy!

Love, Nicole
Mom of 2 year 3month old Cole

Re: Amazing Udate

Posted: Tue Aug 11, 2009 1:40 pm
by Carolyn J
YOOOOOWHOOOOOOOOOOOOOOOOOOO, Cole!!!
Congratulations Mamma for Celebrating successes.You are in for MANY of 'em, I guarantee!!! :)
Carolyn J [aka.."gramma Carolyn J"]
LOBPI/71

Re: Amazing Udate

Posted: Tue Aug 11, 2009 5:29 pm
by Kath
I just can't believe what I am reading... I think this is amazing!!! Yeah for you and yeah for Cole!!!!
I hope he keeps everything you see.

I have thought about having my deltoids botox and wondered if I would have any movements. My deltoids totally controls my arm movement along with my upper traps and wondered if it would be worth it at my age... But I would truly love to supinate like other people.

Yeah and thanks for sharing ... I love reading news like this.

Kath robpi/adult

Re: Amazing Udate

Posted: Wed Aug 19, 2009 5:20 pm
by Cole's Mommy
Hi Kath,
We decided to botox again, because we had seen what we thought were glimpses of ER. I did fear, what if not...what movements would he have left/lose?
So far, so good. I was just reasured and reasured again (minutes before the procedure), that this wouldn't "hurt" his function, but it could improve it...so after discussions, we decided to do it. Best wishes to you!
Nicole

Re: Amazing Udate

Posted: Fri Aug 21, 2009 8:27 am
by Mardelle
CONGRATS!...
WOW!
AMAZING!

I am GRATEFUL for you and your son's joy on this day!
An inspiration for us all...Continue to be Amazed! As it is real! ..Continue your strong, loving and supportive attitude...everyone wins on this path through life, especially your son :)

Re: Amazing Udate

Posted: Thu Sep 03, 2009 10:41 am
by lawrey
Yay Cole!!! That's amazing Nicole!! I'm so happy that things are going well for Cole!! Can't wait to see you guys again! Give me a call sometime!!!

Re: Amazing Udate

Posted: Sat Sep 05, 2009 5:01 pm
by Carolyn J
YES yes, YAYYYYY for Cole!! ...& his Mommy too. :)

Hugs all around your house,
Gramma Carolyn J
LOBPI/71

Re: Amazing Udate

Posted: Sun Sep 06, 2009 1:45 pm
by Tanya in NY
Yeah for Cole!

Tanya in NY
Amber's Mom, ROBPI, 6 years old