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Met a woman with a tbpi today and....

Posted: Fri Aug 23, 2002 3:43 pm
by francine
- she just so happened to show up at the hairdresser when I went to pick up my eldest daughter....

She had a partially flail arm and she was wearing an immobilizer.

She told me about how she is involved in a study at the Unniversity of Pennsylvania on implantable electrical stimulators. She had stimulators implanted and she has to have them hooked up and on at least 6 hours a day and she said that it helps tremendously with her pain.

I have her email address and she has mine and she's going to get me the doctor's name and number and tell me more. I'm also hoping to maybe get a picture so that you can see it. She said that the FDA is just about ready to approve it. She sounded very positive about it all.

Just thought I'd pass this on..... I will post more as soon as I have more information to share.

-francine