United Brachial Plexus Network, Inc.

Hey everyone! First up, I am so sorry I haven't written in a long time. I hope everyone is doing well. Jason and I have been very busy with the bpi and lawsuit along with all the other day to day stuff.
Jason had surgery by Dr. Nath in May. So far nothing has changed. We were in the hospital last week for the pain. They upped the Oxy to 80mg which made him really sick and didn't touch the pain. We saw a specialist (finally) and they are going to implant a stimulator in his rear and run leads through the fat to the neck. When the nerves send pain signals to the brain, he will feel tingeling instead(hopefully). We are still fighting for Social Security as Jason is not back to work due to the pain. He has lost more weight and is not eating. He gets nauseated when he eats. So he is down to 145lbs and was 170 when the accident happened. He is seeing a counselor though. His spirits are really down due to the obvious and me going back to work full time.

So that is where we are. Pretty much in the same place we were before. Does life ever return to some kind of normal?

Thanks for listening,
Amy

Hi Amy and Jason
My son has a BPI and is about 18 months down the track. We are in Australia and I would be really grateful if you coud let me know more information about the implant. Sean has horrible pain, but amazimg guts and determination.
Love and prayers to you both and everyone else who has a need for this site.
Moira

Hello Amy,
I hope things will get better!!! I'm glad you can check in now and then!
T.

I'm truly sorry that things have not turned out that well for Jason. Please send him my best and we will keep him in our thoughts and prayers. I'd be very interested to have more information on this implant. Whenever you have a free moment - can you post more information on this and some sites that have it explained?

Hope things change for the better soon,
francine