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BPI specialists in St. Louis

Posted: Sat Mar 14, 2009 8:19 pm
by Janelle
My son, 5 years, has a ROBPI and we are seriously considering surgery for tendon releases to help the shoulder movement. We have seen Dr. Kozin in Philly and Dr. Latz in Kansas City and heard their opinions on surgery. They have somewhat different opinions so I'm asking for any info regarding Dr. Latz and Dr. Kozin, as well as any Dr. you know of in St. Louis. It almost seems that we may need a third opinion.

Re: BPI specialists in St. Louis

Posted: Sun Mar 15, 2009 12:26 am
by s8n
susan mckinnon at barnes jewish she is very highly recommended
daniel

Re: BPI specialists in St. Louis

Posted: Sun Mar 15, 2009 12:36 am
by mommieinneed
We are seeing Dr Borschel and Dr Goldfarb in St Louis, actually we were supposed to have surgery yesterday but Maggie ended up having a fever so it was postponed.

Re: BPI specialists in St. Louis

Posted: Sun Mar 15, 2009 10:56 pm
by Janelle
I could not find Susan Mckinnon's name on the list of physicians at Barnes Jewish, nor when I typed it in on the web. Could you give me some more information. Thanks.

Re: BPI specialists in St. Louis

Posted: Sun Mar 15, 2009 10:59 pm
by Janelle
What is it about Dr. Borschel and Dr. Goldfarb that you like? Before you decided on surgery for your daughter, did you get other Dr.'s opinions, and if so, how did they compare?

Re: BPI specialists in St. Louis

Posted: Mon Mar 16, 2009 8:05 am
by richinma2005

Re: BPI specialists in St. Louis

Posted: Mon Mar 16, 2009 8:49 am
by mamaofsix
Janelle,

I see Dr. Borschel in St. Louis and I highly recommend him. I operate a support group here (St. Louis) for families affected by BPI's. You can email me if you like at stlbpi@yahoo.com and I can give you more personalized information regarding our experience and some of the input of the other support group members to possibly aid in your decision.

Re: BPI specialists in St. Louis

Posted: Thu Mar 19, 2009 4:50 pm
by lturpen
> susan mckinnon at barnes jewish she is very highly
> recommended
> daniel

I have an upcoming appointment with Dr. Susan McKinnon. You say that u recommend her...did she perform surgery on you...did it help?

Re: BPI specialists in St. Louis

Posted: Fri Mar 20, 2009 11:09 am
by dtrusk
Janelle....could you please email me; dt1008@fairpoint.net

Thanks
Donna

Re: BPI specialists in St. Louis

Posted: Sun Apr 05, 2009 11:18 pm
by CSMITH
I Have an appointment with Dr. Susan MacKinnon in June 09.I am right OBPI and have not seen a Dr. since I was 9yrs of age I am now almost 39, so I am really scared and excited. I have heard she is wonderful.I have her number and the nurses name and number which is who makes the decision if the Dr. can see you or not.If you want to e-mail me.
scottcon97@charter,net
Connie