My attempt for awareness
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bellasnana
- Posts: 23
- Joined: Sun Sep 16, 2007 4:23 am
My attempt for awareness
I recently visited 2 local hospitals and talked to those in charge of birthing classes. I presented the Awareness brochure and asked if I could speak to new classes about the issue and tell my story. Of course they have to get approval, so I'm waiting for an answer. One of the lady's reluctant response "shocked me". She said she was concerned it would cause "undue stress" to the mother. OMG!! My response was, "I'm trying to prevent an injury!" I'll post later with results.
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: My attempt for awareness
BRAVO, Margaret!!! Great Idea if one is brave to present like you are. Hope you get fed-back and can share with us.
I do Awareness stuf al year long on the internetwhere I go in support/social areas like Facebook. I have young Grand-Neices that I've "gotten" interested to know more...we never talk about my injury in the family...
HUgs,
Carolyn J
LOBPI/70
Message was edited by: Carolyn J
I do Awareness stuf al year long on the internetwhere I go in support/social areas like Facebook. I have young Grand-Neices that I've "gotten" interested to know more...we never talk about my injury in the family...
HUgs,
Carolyn J
LOBPI/70
Message was edited by: Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
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richinma2005
- Posts: 861
- Joined: Thu Sep 29, 2005 12:00 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.
Re: My attempt for awareness
Awesome! Awareness like this is fantastic. After the PBS documentary Spotlight-On comes out we will be able to have copies of the show available for our community. I would bet something like that would be great to show at a class like this.
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mamaofsix
- Posts: 214
- Joined: Sun May 11, 2008 5:20 pm
- Injury Description, Date, extent, surgical intervention etc: Second son, Cameron, left obstetric brachial plexus injury in 2005.
Primary never graft surgery at 3 months old at St. Louis Children's Hospital
and several rounds of Botox injections.
Re: My attempt for awareness
Rich,
When is the documentary expected to be shown? This would be great awareness! I have been speaking to local MOPS (Mothers of Preschoolers) groups here about prevention and just spreading the awareness that these injuries exist. They are MOPS groups everywhere, so that would be a thought for anyone interested. Also, some smaller local papers may be interested in writing a story as well. We were able to get 2 papers to write up "our story".
Great Job, Bellasnana!
When is the documentary expected to be shown? This would be great awareness! I have been speaking to local MOPS (Mothers of Preschoolers) groups here about prevention and just spreading the awareness that these injuries exist. They are MOPS groups everywhere, so that would be a thought for anyone interested. Also, some smaller local papers may be interested in writing a story as well. We were able to get 2 papers to write up "our story".
Great Job, Bellasnana!
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bellasnana
- Posts: 23
- Joined: Sun Sep 16, 2007 4:23 am
Re: My attempt for awareness
UPDATE! One of the nurses will allow me to drop off the awareness brochures which she will make available to the new birthing classes and leaves it up to the parents if they choose to take one or not. YEAH!
Now for other awareness good news -- I am going to have a free booth at local school health fair! I'M SO EXCITED for the opportunity !!!!! I will have the chance to have a display board and hand out as many brochures as possible!! It is March 31st and I'll post how it went!
Now for other awareness good news -- I am going to have a free booth at local school health fair! I'M SO EXCITED for the opportunity !!!!! I will have the chance to have a display board and hand out as many brochures as possible!! It is March 31st and I'll post how it went!
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Cole's Mommy
- Posts: 95
- Joined: Sat Dec 15, 2007 2:48 pm
Re: My attempt for awareness
That is absolutely wonderful.
How inspiring you are! I know it will go well!
How inspiring you are! I know it will go well!
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richinma2005
- Posts: 861
- Joined: Thu Sep 29, 2005 12:00 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.
Re: My attempt for awareness
Sorry for the delayed reply. The SpotlightOn program footage was filmed in late february. They are taking all the HiDef footage and compiling it onto DVD's for our review. There is ALOT of footage for this small piece of film, so we need to pick the best parts o put the story together. Once we decide what we want, it will only take 2-3 weeks to put it all together.
Don't worry, we will make a BIG ANNOUNCEMENT when the airings start. We are still looking for donations as well towards the project costs. There are many ways to donate, by sending a check or even using paypal. Every cent donated will be put towards SpotlightOn and prevention/awareness efforts if you indicate that is where you want the donation to be used.
so please consider!
Rich
President UBPN
Don't worry, we will make a BIG ANNOUNCEMENT when the airings start. We are still looking for donations as well towards the project costs. There are many ways to donate, by sending a check or even using paypal. Every cent donated will be put towards SpotlightOn and prevention/awareness efforts if you indicate that is where you want the donation to be used.
so please consider!
Rich
President UBPN
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richinma2005
- Posts: 861
- Joined: Thu Sep 29, 2005 12:00 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.
Re: My attempt for awareness
Also fantastic for the awareness efforts!
rich
rich