United Brachial Plexus Network, Inc.

My name is Lindsey and i am 20 years old from columbus ohio. I have a Left OBPI, up until recently (thanks to searching online) i had little or no information about this injury and I dont know of any support groups or have anyone else i know that suffer's from this too. I was wondering if anyone could kind of point me in the right direction on who or what kind of specialist there is that could help me manage the pain. ive tried physical therapy, Orthopedic's and many others but none of the doctors i have seen had any idea about the injury and had to research it so im finding it hard to get help with managing the pain. Any information or even just someone else to talk to who is going through this too would be so wonderful im tiard of feeling so alone.

please feel free to email me if you feel you could help me. xobabylindseyxo1@yahoo.com

:] Lindz <3

Hi Lindsey
Welcome to UBPN. I'm glad you found us and now you know you are no long alone with this injury. Please feel free to ask any question you think of. There are no silly questions when it comes to obpi. We all have very similar problems as well as a deep desire to support each other. Most of us have the same story how we thought we were the only one's with a rare birth injury.

Kath robpi/adult

Hi Lindsey,
Welcome to the site!

marieke, 33 LOBPI

Welcome...I think you'll find a very kind and open group of people ready and willing to answer all questions.

There's specialists that I'm sure others could recommend, I've never been to one yet but I know many others that have.

Nice to meet you!

Welcome Lindsey...just remember no question is dumb and go bucks!

hi all-

thank you so much for your responces! im soooo excited that i found this site. i have found hope and having others to talk to i feel will really help me! im finally getting things underway and i was contacted this morning about the bpi clinic in cincy and im soo excited! im looking forward to getting to know each and everyone of you :]

--Lindz