United Brachial Plexus Network, Inc.

Hello,

I'm wondering which board might be the best one to go for support as a caregiver for someone w/TBPI. Or, have you considered setting up another one to focus on the caregivers?

I love all the info you provide here and the perspectives of those who have been injured, but sometimes I feel so helpless as Rick's caregiver and wonder if there are others who feel the same....

Thanks! Kim

I would suggest posting your fellings and experiences on all message boards;sometimes parents just go to the General Board because that's al the have time for. Yes, yes, Moms & Dads have posted about their weariness and vent on these Boards and do recieve alot of support,encouragement to take care of yourself some of the time; & Courage and strength to go and just have a massage and/or Pedicure just for you as well as other strategies of how to take care of you 1st.

Carolyn J
LOBPI adult

Carolyn,

Thanks for your reply. I will also check out the general board more often. It seems most people are parents of BPI children on the general board, however, in our situation, Rick is my husband.

With two children, 10 and 14, and a full time job, as well as caring for all of Rick's needs since his accident, I am learning that I need to learn to care for myself first. A massage sounds so heavenly right now. I picked up a card for my chiropractor's massage therapist. I think I may schedule an appointment!

Thank you!
Kim
Wife of LTBPI

Kim-
I was just stopping in here to post the same suggestions, you beat me to it! I'm noticing more and more spouses of TBPI adults participating in the board, at least it feels that way to me, but I've only been around for a year and a half. Anyway, I remember how overwhelming it was at the beginning when my husband was injured, and how I just felt like I needed to cry to someone who actually understood, even a "cyber cry" would have been a relief.

Just my 2 cent!
Amanda

GOOD for both of you Kim & Amanda!
Spouses have alot in comon with Moms too because we all forget to put ourselves on the list...Aduts "withOBPI's too.
Taking care of ourselves 1st is so necesary because we cannot give what we don't have & when your tank is on empty everyone around you feels your stres like a sponge..

Massages & Pedicures ROCK!!
HUGS all around,
Carolyn J
LOBPI/70

ps...I learned too late, you "young'uns" take care now,
Ya' hear!