The medical resource directory has just been updated with the contact information and questionnaire answers by Mr. Rolfe Birch of the Royal National Orthopaedic Hospital in the UK.
ubpn.org/medicalresources/
Nancy Birk
UBPN Secretary
update to medical resource directory
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Re: update to medical resource directory
We so could have used this board 9 years ago. That article was wonderful and I had always heard get a second opinion. A few days after my sons injury I had the audacity to ask for a second opinion. The neurosurgeon at that hospital my son was helicoptered to acted like I had just committed a felon. Not only did he refuse, but when we finally found drs. willing to take him the original dr. would not release his medical records. It took a lawyer to finally get them. It has been 9 years now, but in hindsight I think we had a legitimate lawsuit, but never pursued it as we had more important things to worry about at the time than the drs. ego.
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- Injury Description, Date, extent, surgical intervention etc: January 1980 Yamaha RD200 vs 16 wheeler truck, result, 1 totally paralysed right arm. I was 21, now 54. I had no surgery, I don't regret this. Decided to totally ignore limitations (easily done aged 21) adapted very quickly to one handed life, got married, had 3 kids, worked- the effect of the injury on my life (once the pain stopped being constant) was minimal and now, aged 54, I very rarely even think of it, unless I bash it or it gets cold, then I wish I'd had it amputated :) Except for a steering knob on my car, I have no adaptations to help with life, mainly because I honestly don't think of myself as disabled and the only thing I can't do is peel potatoes, which is definitely a good thing.
Re: update to medical resource directory
thank you nancy, his questionnaire answers make very interesting reading. Interesting that he feels a specialist bpi centre is needed per 5 million of population, i agree! Did you send a questionnaire to Simon Kay at Leeds too?
Re: update to medical resource directory
Jenny,
Yes we did send a questionnaire to Simon Kay. Have not heard back from him yet. A list of docs who have been sent questionnaires but who have not yet responded is at http://ubpn.org/medicalresources/nrdocs.html
Nancy
Yes we did send a questionnaire to Simon Kay. Have not heard back from him yet. A list of docs who have been sent questionnaires but who have not yet responded is at http://ubpn.org/medicalresources/nrdocs.html
Nancy
Re: update to medical resource directory
Nancy..
I have a list of other surgeons who specialise in treating BPI in the U.K. would you like me to send this on to you? or someone else?
Liz
I have a list of other surgeons who specialise in treating BPI in the U.K. would you like me to send this on to you? or someone else?
Liz
Re: update to medical resource directory
Thanks Liz.
Kathleen Kennedy is chairing this committee and is sending out the questionnaires. I code them when they come back in and put them up on the website. You can send suggestions with contact information to her at kathleen@ubpn.org
Nancy
Kathleen Kennedy is chairing this committee and is sending out the questionnaires. I code them when they come back in and put them up on the website. You can send suggestions with contact information to her at kathleen@ubpn.org
Nancy