Read my Outreach the other day. That article by the "other Kath" was really something. What I lost in the delivery room hit me right in the gut. I guess I've always thought those things but never expressed it so eloquently or channelled my anger to that zero point of Erb's. I was surprised,also that I allowed myself to feel the grief -for me-at what waas lost through incompetence and apathy in a Dr. that so much trust was given to. I can't describe the feeling--kind of like you read about in near death experiences where your whole life flashes before your eyes,maybe.
Anger, grief,frustration. How about the rest of you? Pat
Outreach
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patpxc
- Posts: 315
- Joined: Sat Nov 03, 2001 1:06 am
- Injury Description, Date, extent, surgical intervention etc: C-5 and C-6. Unable to supinate. Contracture elbow. Wrist bone underdeveloped.
Can raise forearm to mouth level. shoulder is limited in movement. Unable to put arm behind back. Secondary- early arthritis, carpal tunnel, pronator syndrome,scoliosis - Location: Ohio
Re: Outreach
Pat
That was me... I wrote it... but I did not get my outreach to re-read it.
I wrote it from the gut - it was a post on our old message boards. It was really at a time when I became in touch with my own feelings about this injury.
I guess I was so busy that I truly never thought too much about my arm... how it happened... the who-what, where and how of it all... I was so busy raising my family and working around it... I just accepted it as part of me...
When I began to loose my other "good" arm and researching because I could not get any answers from doctors or off the internet at first... I was scared and worried... That is when I began to realize the impact of this injury on my life... Before that - I just tried to pretend it was perfectly ok that someone made a mistake injured me, and change the course of my life. I never thought about my arm impacting all of my decisions till I stopped being able to do everything else with the "good" arm...
Ok enough sappy stuff... I needed to step back and take a real look at Erb's/OBPI and the article is the result...
I am glad that you understood my feelings... I guess after I wrote this is when I realized that I had finished a sort of grief process that I never realized I needed...
I realized that Erb's may have change my arm but not ME and because of Erb's I developed in ways I may not have - if I had not been challenged by Erb's...
Kath
That was me... I wrote it... but I did not get my outreach to re-read it.
I wrote it from the gut - it was a post on our old message boards. It was really at a time when I became in touch with my own feelings about this injury.
I guess I was so busy that I truly never thought too much about my arm... how it happened... the who-what, where and how of it all... I was so busy raising my family and working around it... I just accepted it as part of me...
When I began to loose my other "good" arm and researching because I could not get any answers from doctors or off the internet at first... I was scared and worried... That is when I began to realize the impact of this injury on my life... Before that - I just tried to pretend it was perfectly ok that someone made a mistake injured me, and change the course of my life. I never thought about my arm impacting all of my decisions till I stopped being able to do everything else with the "good" arm...
Ok enough sappy stuff... I needed to step back and take a real look at Erb's/OBPI and the article is the result...
I am glad that you understood my feelings... I guess after I wrote this is when I realized that I had finished a sort of grief process that I never realized I needed...
I realized that Erb's may have change my arm but not ME and because of Erb's I developed in ways I may not have - if I had not been challenged by Erb's...
Kath
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patpxc
- Posts: 315
- Joined: Sat Nov 03, 2001 1:06 am
- Injury Description, Date, extent, surgical intervention etc: C-5 and C-6. Unable to supinate. Contracture elbow. Wrist bone underdeveloped.
Can raise forearm to mouth level. shoulder is limited in movement. Unable to put arm behind back. Secondary- early arthritis, carpal tunnel, pronator syndrome,scoliosis - Location: Ohio
Re: Outreach
How many people dreaded gym class because they knew that when it came time to choose up sides they would be the leftover that nobody wanted? Or how about just self-confidence in general? Luckily I did well in school-academically but I know I hid a lot that looked to others like something between sarcasm and belligerence. I hated being different.
Anyway, I'm glad it was you who wrote the article. I'll quit gushing about it, becauseyou write good stuff like that all the time and it's expected of you. LOL Pat
Anyway, I'm glad it was you who wrote the article. I'll quit gushing about it, becauseyou write good stuff like that all the time and it's expected of you. LOL Pat
Re: Outreach
Thanks Pat...
I failed English 4 years in a row in High School because I could not spell... off to summer school and then I would just pass ... guess that's another secondary side effect of obpi....
I always wrote things down when I was sad or happy... I just never shared them with anyone until recently... I was intimidated by my spelling... I love spell check... too bad I don't always use it...LOL...LOL
Kath
Kath
I failed English 4 years in a row in High School because I could not spell... off to summer school and then I would just pass ... guess that's another secondary side effect of obpi....
I always wrote things down when I was sad or happy... I just never shared them with anyone until recently... I was intimidated by my spelling... I love spell check... too bad I don't always use it...LOL...LOL
Kath
Kath
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patpxc
- Posts: 315
- Joined: Sat Nov 03, 2001 1:06 am
- Injury Description, Date, extent, surgical intervention etc: C-5 and C-6. Unable to supinate. Contracture elbow. Wrist bone underdeveloped.
Can raise forearm to mouth level. shoulder is limited in movement. Unable to put arm behind back. Secondary- early arthritis, carpal tunnel, pronator syndrome,scoliosis - Location: Ohio
Re: Outreach
I used to write poetry. Just thought about it again last night. Maybe I'll give an Erb's poem a try. I was always a good speller until about 5 years ago when my mind started to fade. Now I have to write things down- just can't spell in my head anymore.
By the way, my MRI of the brain was normal. the one I had 3 years ago wasn't. The Dr. said one of the tets must have errors. Which one????????? Sometimes I get so Po'ed at the medical profession.
How's the support group going? Pat
By the way, my MRI of the brain was normal. the one I had 3 years ago wasn't. The Dr. said one of the tets must have errors. Which one????????? Sometimes I get so Po'ed at the medical profession.
How's the support group going? Pat
Re: Outreach
Kath--
I knew it was yours the minute I opened it
It was BEAUTIFUL the first time around, and even more so the second!!
You wrote what so many of us have felt from time to time.
Thank you
T.
I knew it was yours the minute I opened it
It was BEAUTIFUL the first time around, and even more so the second!!
You wrote what so many of us have felt from time to time.
Thank you
T.
Re: Outreach
Thanks guys...
I just received my Outreach on Saturday.
I had my children read my note... I saw a few tears..LOL... hummmmm is that mother's guilt...LOL...
They just never thought of me as having lost anything. That is nice to know... They still think I am young...
To all of those people who did such a wonderful job on OUTREACH...
Thank You...
I loved every page of it...
Thanks for all the hard work you really all did a wonderful job.
Kath
I just received my Outreach on Saturday.
I had my children read my note... I saw a few tears..LOL... hummmmm is that mother's guilt...LOL...
They just never thought of me as having lost anything. That is nice to know... They still think I am young...
To all of those people who did such a wonderful job on OUTREACH...
Thank You...
I loved every page of it...
Thanks for all the hard work you really all did a wonderful job.
Kath