Page 1 of 1
Arthrogryposis
Posted: Sun Sep 14, 2008 8:23 pm
by MisdiagnosedinCA
Has anyone been diagnosed with bilateral brachial plexus palsy and then discover they really have arthrogryposis?
Re: Arthrogryposis
Posted: Mon Sep 15, 2008 1:54 pm
by rbwalton
If they misdiagnosed you before, how do you know they are right this time? Is there a test for this?
Re: Arthrogryposis
Posted: Tue Sep 16, 2008 2:59 am
by MisdiagnosedinCA
The first doctor did not order any x-rays. The second set of doctors did look at x-rays of the entire arm and found her radial heads in the elbow were dislocated before birth. This was confirmed by three separate teams, including a genetist.
Re: Arthrogryposis
Posted: Tue Sep 16, 2008 2:47 pm
by claudia
I found a support group for arthrogryposis.
amcsupport.org
good luck,
claudia
Re: Arthrogryposis
Posted: Mon Sep 22, 2008 11:42 am
by jljm
Somewhat similar situation here. Send me an e-mail if you would like to chat.