http://ubpn.org/ubpnweb.nsf/web/programs.html
I've recently become the new chairperson for the In-Touch committee, which is part of UBPN. You can refer to the link above for this program (and others sponsored by UBPN). Here are the goals that I have in mind for this program:
1. Obtain a Universal Code for reporting brachial plexus injury from the CDC.
2. Long term and total body impact study on birth related brachial plexus injury.
3. To have as much of, if not all of the misinformation on the web corrected and updated.
4. The Medical and Therapist Directory-
*updated on an on-going basis
*the doctors and therapists listed in directory responding to requests for updated information
*on-going search for new doctors & therapists to add to directories
5. Presidential Proclamation - to have this occur one day and celebrate!
Within these long-term goals, there are short-term goals that I set up. I did not come up with these long-term goals on my own, my predecessor's knowledge and expertise was put to use in this area.
Basically, what I am posting here for is this...I'm looking for members of the community who are interested in volunteering time to help with the In-Touch committee. If you are interested in volunteering time (2 hours a month, 1 hour a day, as much or little time as you desire) to UBPN and In-Touch, then please contact me at tanya@ubpn.org as the e-mail address. We'll be able to talk more at length then about what is entailed in the committee, and what your area of interest is. No time committment is too small, or too great for that matter. I'd appreciate any help!
Thanks in advance!
Tanya in NY
In-Touch Chairperson
BOD Member
In-Touch Program
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Tanya in NY
- Posts: 935
- Joined: Mon May 03, 2004 10:51 am
- Injury Description, Date, extent, surgical intervention etc: I am Mom to Amber, injured at birth. I serve on the Board of Directors for UBPN, and am a labor/delivery nurse, too.
- Location: NY State
- Contact:
In-Touch Program
Tanya in NY
Amber's Mom, ROBPI, 13 years old
Amber's Mom, ROBPI, 13 years old
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: In-Touch Program
Tanya
I hope you have received tons of answers by now.
It would be great if people join you and each write to their respective states government reps as well as their federal reps to make them aware of bpi injury.
Kath robpi/adult
I hope you have received tons of answers by now.
It would be great if people join you and each write to their respective states government reps as well as their federal reps to make them aware of bpi injury.
Kath robpi/adult
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi