Page 1 of 4

Maia is severely burned from forgetting sunscreen at the wrong time.

Posted: Fri Aug 01, 2008 12:18 am
by F-Litz
I'm writing this post to send a message out to everyone with kids who have bpi - just in case you don't know this.... about sun & the importance of sunscreen.

Maia has a left bpi and she had horner's as well (droopy eye). She went to the beach with the orchestra - they performed on the music pier. And afterwards they had 4 hours to run around and have fun. Maia and her dad went to the beach and frolicked in the water the ENTIRE time and they both just forgot to use sunscreen.

She is now terribly burned. She has sun stroke - was very ill - flu like symptoms - fever, chills, nausea, pain and more. And this morning the blistering began and as every hour passed, there were more and more blisters... some 1-2 inches in size and completely filled. Her affected arm is covered about 80% in blisters and her unaffected arm is covered about 20% in blisters. Her surgery scars are now about 5x larger than they were. Her face is very blistered as well - probably the horners has something to do with this.

Burn care as provided to us by her doctor is absolutely horrific and painful. I am taking her to a pediatric burn specialist tomorrow to see if our burn care needs to be different.

PLEASE DON'T LEAVE YOUR HOUSE WITHOUT THE SUNSCREEN! And set our watch to beep when you need to reapply the sunscreen.

I cannot believe how bad this burn is on her affected side. It is just horrific.

Maia has been in camp in the full sun for 6 weeks and she didn't even have a tan line- that's how good her sunscreen is. We use Alba Botanical KIDS sunscreen with titanium oxide. She can't use the "regular" stuff because she's allergic and not all of it works for her.

what a 24 hours this has been... unbelievable

Re: Maia is severely burned from forgetting sunscreen at the wrong time.

Posted: Fri Aug 01, 2008 1:01 am
by denaegirl
Poor Maia!
Hope you get some better answers from your Pedi. The sun can be brutal on the young ones for sure!

You can bet that I keep Malik out of the sun as much as possible!

Hope she starts feeling better soon

Denae
Mom to Malik 14 month old LOBPI

Re: Maia is severely burned from forgetting sunscreen at the wrong time.

Posted: Fri Aug 01, 2008 1:23 am
by mommieinneed
Wow how sorry I am that Maia got that burnt. I sure hope it heals quickly and that you get better care for it by the burn specialist.

Tell Maia that Maggie and I will be thinking and praying that she gets better real soon. Hugs and Kisses from Mags and Me.

Re: Maia is severely burned from forgetting sunscreen at the wrong time.

Posted: Fri Aug 01, 2008 9:09 am
by mamaofsix
Thanks for sharing. I will keep her in my prayers and update us with her process.

I am definitely getting sunscreen for my little one today!!

Re: Maia is severely burned from forgetting sunscreen at the wrong time.

Posted: Fri Aug 01, 2008 9:36 am
by Jordansmom
Oh wow, Francine! I'm so sorry to read this! Thanks for the reminder about sunscreen. We'll keep Maia in our thoughts and prayers for a speedy healing process.

Re: Maia is severely burned from forgetting sunscreen at the wrong time.

Posted: Fri Aug 01, 2008 10:58 am
by F-Litz
http://www.drugstore.com/products/prod. ... atid=12101
This is the Alba Botanical KIDS sunscreen that we use.

http://www.drugstore.com/products/prod. ... atid=12101
And this is the pure zinc/titanium sunscreen.
this is what we are going to put on her surgical incisions from now on

Re: Maia is severely burned from forgetting sunscreen at the wrong time.

Posted: Fri Aug 01, 2008 11:10 am
by PRISCILLA
Yikes ! How horrible ! She must be miserable ! Good luck on taking her to the burn specialist ! Let us know what they say. Hopefully it can get cleared up before school starts !

Re: Maia is severely burned from forgetting sunscreen at the wrong time.

Posted: Fri Aug 01, 2008 11:28 am
by marieke
Oh Fran, poor Maia! Please let her know that I am thinking about her.

Hope you get some relief from the pedi burn specialist!

Marieke 32, LOBPI

Re: Maia is severely burned from forgetting sunscreen at the wrong time.

Posted: Fri Aug 01, 2008 12:55 pm
by AlannahD
Thinking of you and hoping Maia heals up quickly from the burn - Camille B.

Re: Maia is severely burned from forgetting sunscreen at the wrong time.

Posted: Fri Aug 01, 2008 5:10 pm
by Carolyn J
Most of us adults with OBPI's have posted and talked about our affected side always burns badly. I, for 1, have the biggest, floppiest sunhat I could find to walk my dog even on semi-cloudy days and I always wear long sleeves.

FYI, everyone is welcome on the "Adults with.." Message Board.There is alot of helpful information there.

Hugs all around,
Carolyn J
LOBPI adult