Maia is severely burned from forgetting sunscreen at the wrong time.
Posted: Fri Aug 01, 2008 12:18 am
I'm writing this post to send a message out to everyone with kids who have bpi - just in case you don't know this.... about sun & the importance of sunscreen.
Maia has a left bpi and she had horner's as well (droopy eye). She went to the beach with the orchestra - they performed on the music pier. And afterwards they had 4 hours to run around and have fun. Maia and her dad went to the beach and frolicked in the water the ENTIRE time and they both just forgot to use sunscreen.
She is now terribly burned. She has sun stroke - was very ill - flu like symptoms - fever, chills, nausea, pain and more. And this morning the blistering began and as every hour passed, there were more and more blisters... some 1-2 inches in size and completely filled. Her affected arm is covered about 80% in blisters and her unaffected arm is covered about 20% in blisters. Her surgery scars are now about 5x larger than they were. Her face is very blistered as well - probably the horners has something to do with this.
Burn care as provided to us by her doctor is absolutely horrific and painful. I am taking her to a pediatric burn specialist tomorrow to see if our burn care needs to be different.
PLEASE DON'T LEAVE YOUR HOUSE WITHOUT THE SUNSCREEN! And set our watch to beep when you need to reapply the sunscreen.
I cannot believe how bad this burn is on her affected side. It is just horrific.
Maia has been in camp in the full sun for 6 weeks and she didn't even have a tan line- that's how good her sunscreen is. We use Alba Botanical KIDS sunscreen with titanium oxide. She can't use the "regular" stuff because she's allergic and not all of it works for her.
what a 24 hours this has been... unbelievable
Maia has a left bpi and she had horner's as well (droopy eye). She went to the beach with the orchestra - they performed on the music pier. And afterwards they had 4 hours to run around and have fun. Maia and her dad went to the beach and frolicked in the water the ENTIRE time and they both just forgot to use sunscreen.
She is now terribly burned. She has sun stroke - was very ill - flu like symptoms - fever, chills, nausea, pain and more. And this morning the blistering began and as every hour passed, there were more and more blisters... some 1-2 inches in size and completely filled. Her affected arm is covered about 80% in blisters and her unaffected arm is covered about 20% in blisters. Her surgery scars are now about 5x larger than they were. Her face is very blistered as well - probably the horners has something to do with this.
Burn care as provided to us by her doctor is absolutely horrific and painful. I am taking her to a pediatric burn specialist tomorrow to see if our burn care needs to be different.
PLEASE DON'T LEAVE YOUR HOUSE WITHOUT THE SUNSCREEN! And set our watch to beep when you need to reapply the sunscreen.
I cannot believe how bad this burn is on her affected side. It is just horrific.
Maia has been in camp in the full sun for 6 weeks and she didn't even have a tan line- that's how good her sunscreen is. We use Alba Botanical KIDS sunscreen with titanium oxide. She can't use the "regular" stuff because she's allergic and not all of it works for her.
what a 24 hours this has been... unbelievable