First visit to Mayo

Treatments, Rehabilitation, and Recovery
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Rosaline
Posts: 10
Joined: Sat May 31, 2008 10:44 pm

First visit to Mayo

Post by Rosaline »

Hello everyone,
I just want to give an update as to my son's condition. He has had some trembling motions in the bathtub, but nothing else that significant. We are still hopeful. We have our first scheduled appointment at the Mayo clinic in Minnesota on August 11-13. I would love to hear about some of yalls (southern, I know) first visit. We are VERY excited and can't wait. We were told that we would be receiving a letter, does anyone know what will be in the letter? I am so curious. Will they tell us a plan of action and maybe an explanation of what procedure they will be doing? My son (Jay) has a million questions for me and I don't have the answers so I am hoping that some of yall (again southern, I know) will be able to help shed some light on whats to come. Keep us in your prayers and we will keep everyone informed.
Rosaline
PRISCILLA
Posts: 100
Joined: Sun Feb 15, 2004 5:43 pm
Injury Description, Date, extent, surgical intervention etc: Son, traumatic injured (TBPI) - November 2003. 3 surgeries to date.
Location: North Carolina

Re: First visit to Mayo

Post by PRISCILLA »

Hi Rosaline, Another southerner here ! My son is a patient at Mayo. Hes been there a few times. Just e mail me if I can be of any help to you. He just had a gracilis muscle transfer there 5 weeks ago.

Priscilla
bensmom
Posts: 92
Joined: Sun Sep 09, 2007 7:54 am

Re: First visit to Mayo

Post by bensmom »

Oh I was just like you as our first visit neared, excited, anxious and ready to crawl out of my skin! I'm not sure if it's the same for everyone- but our "welcome packet" included a schedule of tests my husband was to have done--for him it was an MRI and EMG and descriptions of these tests, and also appointments with the neurology department and the BPI team- for us this was the last appointment and they had received all the test results and at this point gave us their opinions and plan for treatment. You will also get lots of informational brochures about Mayo itself, transportation, accomodations, maps etc. I can't say enough about how organized the process is- after months of sitting for hours in waiting rooms to be told, "hmmm...I'm not sure" this was so refreshing. And Mayo itself is so impressive and patient focused. We had plenty to occupy ourselves with during our downtime. Good luck and let me know if I can answer any other questions.
ptrefam
Posts: 674
Joined: Fri Jan 06, 2006 5:19 pm

Re: First visit to Mayo

Post by ptrefam »

The info packet that first came had his appts, times, places, test and explanations. List of hotels, Shuttle schedule. hmmm think that was about it.
This thread tells pretty much about what our first visit was like.
http://ubpn.org/messageboard/thread ... 709#144709

http://ubpn.org/messageboard/thread ... 828#134828
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