United Brachial Plexus Network, Inc.

I am hoping one of you has an idea about how to help a young man our family met while vacationing.

He is from Ukraine, on a summer work study in N.C. He's 20, ROBPI with a BADLY subluxed shoulder. He's had absolutely no medical or therapeutic intervention for his injury.

His shoulder is subluxed to the point that he cannot access his deltoid in any fashion. It is almost as if his shoulder is fused to his body. He has excellent hand and wrist function, and very good biceps return.

When we were speaking with him, he asked if anything could be done to help him. Money/insurance seems to be his obstacle.

Does anyone know of any programs that might help this young man see a specialist before he goes home this Fall? I feel like he's been victimized twice!

I'm going to call the N.C. Dept. of Health to see if they have any ideas. I'd be grateful for any ideas you all might have to help him!

Thank you!

mica

Can Mayo Clinic and Angel Flights help him? Mica, try contacting the Mayo Clinic's Coordinator.it doesn't hurt to ask...

Keep us updated, Ok?! You are an awesome Resource person, you can do this!

HUgs,
Carolyn J


Message was edited by: Carolyn J

Because he is from the Ukraine he may be able to still be seen at Shriners. They are supposed to be current patients to be seen after age 18 but they might make an exception as they do see patients up to 21 years old, thats when I was discharged.

Also try calling Gillette in Minnesota, I believe they see adults too. There is one bpi specialist, I have haerd great things about her however I personally never want to see her again.

And like Carolyn said try the Mayo Clinic in MN. They do some cherity work. Not sure if he will get anywhere but it doesnt hurt to try.
Good luck to this young man!
Amy 21 years old ROBPI from MN

I have an e-mail in to Dr. Kozin.

I'll also check with Mayo.

Thanks, you two!!!

You could also try emailing Dr Nath I read about him doing surgery's pro bono for people from other countries here in the US his email is drnath@drnathmedical.com it can't hurt to ask everyone you can think of. Good luck Mare

I can't help with any other information but you guys are great for trying to help him. It would be wonderful if he can get some treatment and possibly more function.

Kath robpi/adult

Guys,

I'm hitting dead ends with this. This young man really needs help - but no one has been willing to help him on a charity basis.

Does anyone have specific contact names and numbers I could try? I really would love to help him.

Thank you!

Sorry Mica, I have no other ideas
If I think of anything, I will let you know though.

Maybe you guys can work together and do some fundraising?
Hugs,
Amy

Did you try calling dr. Waters??He might be able to help.

Amanda (mom to JamieMarie 3yrs old ROBPI)