I just wanted to say what an awesome idea the private boards are!
As a parent, I'm grateful for the general board, as well as the public adult board. I learn so much from both of them, and I always appreciate the candor with which people are willing to share.
As a parent, I am also grateful that my daughter will have a private board, when she is old enough to post. A place where every single person on the board will "get it" in the way only another survivor can.
Bravo to whoever thought to create the private boards!!!!!
Private adult and teen boards
-
hope16_05
- Posts: 1670
- Joined: Tue Jul 01, 2003 11:33 am
- Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
- Location: Minnesota
- Contact:
Re: Private adult and teen boards
Mica, you are always so sweet! I cant wait until Aria is old enough to participate on the boards! I remember being 13 and finally having a place where all my questions could be answered, it was amazing!
Glad you as a parent love the idea!
Hugs,
Amy 21 years old ROBPI from MN
Glad you as a parent love the idea!
Hugs,
Amy 21 years old ROBPI from MN
Amy 28 years old ROBPI from MN
-
Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Private adult and teen boards
Ohhh Mica, how sweet of you to support the Private Board. I do hope some teens find it too! Aria is sure lucky to have such an understanding Mom!
Hugs to you and Aria,
UBPN Gramma Carolyn J
LOBPI/70
Message was edited by: Carolyn J
Hugs to you and Aria,
UBPN Gramma Carolyn J
LOBPI/70
Message was edited by: Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
-
Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Private adult and teen boards
Mica
Thanks so much for the support, this board is something adult/obpi have been looking forward to.
It's nice that we have two places one that is open and we can provide a wealth of information. Sort of our own long range study. But it is so important to be able to share with our peers.
Carolyn... no teens on the Adult board. We have set up a private board for teenagers and that is the best place for them and their safety on the Internet. They can support and mentor each other through the challenges they face in today's society.
Kath robpi/adult
Thanks so much for the support, this board is something adult/obpi have been looking forward to.
It's nice that we have two places one that is open and we can provide a wealth of information. Sort of our own long range study. But it is so important to be able to share with our peers.
Carolyn... no teens on the Adult board. We have set up a private board for teenagers and that is the best place for them and their safety on the Internet. They can support and mentor each other through the challenges they face in today's society.
Kath robpi/adult
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
-
Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Private adult and teen boards
HURRAY for the Teen Board!!!
I hope Freezin' Frankie gets on Board!
HUGS,
Carolyn J
I hope Freezin' Frankie gets on Board!
HUGS,
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
Re: Private adult and teen boards
i'm all for the idea i sometimes say things that might not be appropriate on the boards and i don't wanna offend anyone lol
-
Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Private adult and teen boards
I say GO FOR IT, DANIEL!!
Carolyn J
LOBPI/ almost adult
Carolyn J
LOBPI/ almost adult
Carolyn J
Adult LOBPI
Adult LOBPI
Re: Private adult and teen boards
I'm with Carolyn....
Go for it Daniel............
TinaT
Bi-OBPI/Mostly Childlike and refusing to grow "up"
All kidding aside, pot, prescription pain killers???? WHAT does it matter. We ALL find what works best for us and go with it when need be. There was a time I was doing painkillers & Cap't Morgan to sleep at night. And you know what. I didn't and wouldn't give a crap what anyone thought of me. It worked for me and that's all that mattered.
Go for it Daniel............
TinaT
Bi-OBPI/Mostly Childlike and refusing to grow "up"
All kidding aside, pot, prescription pain killers???? WHAT does it matter. We ALL find what works best for us and go with it when need be. There was a time I was doing painkillers & Cap't Morgan to sleep at night. And you know what. I didn't and wouldn't give a crap what anyone thought of me. It worked for me and that's all that mattered.
Re: Private adult and teen boards
I agree totally Frankie has talked privately with Amy but has always refused to ask questions openly I think its twice as hard for teen boys since they don't like to talk about anything Mare
-
Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Private adult and teen boards
Time to move this up for those who are not aware we have this board.
The girls are all posting away and finally one brave man has signed in.
I know for sure there are many men reading and not posting. I am surprised I have not hear from some who do post here.
Just email me if you want to enter the private board.
Just send you log in name to KathM@ubpn.org
Kath robpi/adult
The girls are all posting away and finally one brave man has signed in.
I know for sure there are many men reading and not posting. I am surprised I have not hear from some who do post here.
Just email me if you want to enter the private board.
Just send you log in name to KathM@ubpn.org
Kath robpi/adult
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi