United Brachial Plexus Network, Inc.

Hi All

Many times adult/obpi seem to feel uncomfortable posting publicly.
Adult/OBPI have often stated, via e-mail, that it is not possible and uncomfortable to be truly open on this public form.
Please respond either way yes or no to UBPN making this a closed board for Adult/OBPI only.

If you would like this form to be open only to Adult/OBPI would you please respond via e-mail to me as soon as possible.
Please use my UBPN address even if you have my other email. It's important that I gather this information in one place.

KathM@ubpn.org

Thanks
Kath adult/robpi

There could be two boards for this group, a public one where they can serve as a resource, and a private one, only available to users who have permisions to see it, so this one wouldn't disappear, just a new private one would show up for those that send info and let kath now.

Rich
I love that idea! This way we could post publicly to those who find UBPN after years of being alone and still share somethings privately.

Thanks so much
Kath

I agree with Rich..

Kath, you know how Kate's board is open for most things but closed for that one section..? Do it like that maybe, that would work better than making this one completely private...

Marieke 32, LOBPI

Kath and Mareke. Check it out and tell me if this is what you were thinking of. Only you two were added thus far. try and see it when you are logged out, you cannot right?

Rich, I love this idea. Can I get access...Judy

Yup, exactly. Working well. If I log out, it disappears.

Marieke 32 LOBPI

I vote with Rich,Kath,Marieke & Judy T. for 2 Boards for Adult OBPI's. I cannot figure out how to get to the "trial"Board...

2 Boards please...I love questions from Moms,teens and new Adults With who find us...

HUGS to all,
Carolyn J

Marieke,

I don't know what you are talking about when you say, "Kate's board." Please explain.

Thank you,

Joanie

Rich,

Sounds like a good idea to me. I have long bemoaned the fact that we adult OBPI's do not have a private forum. I don't know what I would say on such a forum that would be different from what I say here, but I certainly don't know what to say to a parent who wants to know exactly what their child's life will be like with this injury. Everyone's life is different - with or without an injury. Everyone's injury is different. I'm not G-d. I can't pretend to know what someone else's life will be like. I'm tired of all these parents who seem to think that we only exist to be used as a resource for them. Well, that's my rant for now.

Joanie