Two Little Monkeys

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
andream
Posts: 17
Joined: Sat Feb 09, 2008 4:21 pm

Two Little Monkeys

Post by andream »

Hello everyone!

I am not new to the board, but have not posted in a long while...

Since last August, I have been working on starting a non-profit organization to (hopefully) accomplish two goals:
1. Raise awareness and provide information about OBPIs
2. Raise money for the BP team at the Philadelphia Shriners Hospital where our daughter had surgery.

Well, our website finally went live last week...

www.twolittlemonkeys.org

If you get a chance, please check it out and let me know what you think. I am completely open to any questions, comments, complaints, suggestions, etc you may have. Feel free to respond to this post or email me directly.

As you will read in the About Us section, our daughter Allison suffered a brachial plexus injury to her right arm at birth. She has had one surgery to date - an arthroscopic ACR with Dr. Kozin in May of 2007. She was nine months old at the time, their youngest child to undergo this procedure, but because her glenohumeral joint was in such rapid deterioration something had to be done.

Ally is doing wonderfully today. We still have major work to do with her to help her reach more of her full-potential, but considering where she was pre-surgery, we could not be happier.

Anyway, that's a very brief version of our story...

Thank you all for reading and I hope that you enjoy looking at our website.

Sincerely,

Andrea
Mica
Posts: 350
Joined: Sat Jan 20, 2007 11:27 am

Re: Two Little Monkeys

Post by Mica »

Andrea,

The site is wonderful!!! And, I love those adorable tee shirts you're selling! How cool is it that you're donating the proceeds to the Shriners BPI team???

I'm going to send a link to my address list. I also think the tee shirts are a very cool, fun way to spread awareness about OBPI. The more people who become educated about this injury, the less it will occur!!!

Thanks for doing this for our community!!!

mica
Allison-S
Posts: 53
Joined: Fri Feb 06, 2004 8:27 pm

Re: Two Little Monkeys

Post by Allison-S »

Andrea,
Beautiful job!!! It's funny, I call my children two little monkeys. I have no doubt that you will accomplish your goals. Nice work.

Just ordered my shirt. I love it!!
Can't wait to get it:-)


Message was edited by: Allison-S
User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Two Little Monkeys

Post by marieke »

Ordered mine too! Can't wait to get it!
:) Marieke, 32, LOBPI
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
jg's mom
Posts: 7
Joined: Fri Jan 25, 2008 1:07 am

Re: Two Little Monkeys

Post by jg's mom »

I think the website is great! Very comprehensive. Cute shirts we will buy some too.
User avatar
Tanya in NY
Posts: 935
Joined: Mon May 03, 2004 10:51 am
Injury Description, Date, extent, surgical intervention etc: I am Mom to Amber, injured at birth. I serve on the Board of Directors for UBPN, and am a labor/delivery nurse, too.
Location: NY State
Contact:

Re: Two Little Monkeys

Post by Tanya in NY »

Just ordered one for Amber. Very cute shirts, and great job on putting the site together. Way better than I could have ever managed to put together on a website. I'm envious of those who can manage a computer that well!

Way to go!

Tanya in NY
Amber's Mom, ROBPI, 5 years old
Tanya in NY
Amber's Mom, ROBPI, 13 years old
felicia
Posts: 54
Joined: Tue May 22, 2007 11:27 pm

Re: Two Little Monkeys

Post by felicia »

So Cute!! I just ordered one for me and one for Olivia. It's funny because I have 2 children and I have always called Olivia my little monkey because she has is such a climber, and gets into everything...even moreso since having her surgery with Dr. Kozin in October! What a wonderful idea you had to honor such a wonderful place like Shriners!
Felicia mom to Olivia 2 1/2
User avatar
karategirl1kyu
Posts: 363
Joined: Mon Feb 19, 2007 12:59 am
Injury Description, Date, extent, surgical intervention etc: LOBPI, had surgery when I was 9- they moved muscles and tendons from one side of my arm to the other side. I can lift my arm to about my eye level, can't straigten it all the way and can't completely supinate my wrist.
Location: Richmond, RI

Re: Two Little Monkeys

Post by karategirl1kyu »

Great site! I love how it appeals towards the children!
~mel
~Mel/23/LOBPI
Mica
Posts: 350
Joined: Sat Jan 20, 2007 11:27 am

Re: Two Little Monkeys

Post by Mica »

Bumping up for those who haven't seen this great site!

Aria loves wearing her shirt!!! Everyone always wants to know where we got it, and it really gives me a chance to educate another family about this PREVENTABLE injury!!! :)

mica
Cole's Mommy
Posts: 95
Joined: Sat Dec 15, 2007 2:48 pm

Re: Two Little Monkeys

Post by Cole's Mommy »

Yes! I love the site and I'm ordering shirts for Cole and myself. His might be a little big...but it will be just right.

On a side note....I was wondering where you found the stats. The "out of those 40% only 10-15% need surgical intervention." (If I read it right.)

Cole is 9 1/2 now. No surgeries yet. It just gives me hope that more recovery with us working is still a possibility. :-)

Nicole
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