United Brachial Plexus Network, Inc.

HI, MY SON HAS BPI, HE HAS HAD IT FOR A YEAR NOW AND HAS NOT BEEN ABLE TO WORK, MY HUSBAND AND I HAVE BEEN HELPING HIM AND CAN NO LONGER DO AS WE LIVE ON S.S. I HAVE WRITTEN TO CONGRESS AS OUR SON HAS BEEN TURNED DOWN TWICE NOW BY S.S. DISABILITY HIS DOCTOR HAS WRITTEN LETTERS STATING HE CANT WORK FOR AT LEAST TWO MORE YEARS. HE GOES FOR INFUSIONS 5 DAYS A WEEK FOR 5 HOURSEVERY FEW MONTHS HE HAS BEEN IN TERRIBLE PAIN AND IN AND OUT OF HOSPITAL. IS THERE ANYONE WHO COULD GIVE SOME GOOD ADVISE AS WHAT WE MIGHT BE ABLE TO DO TO GET HIM HELP HE NEEDS BEFORE HE BECOMES HOMELESS. THANKS

I had trouble with SS too. I had applied when my daughter was a year and was denied said she wasnt disabled enough. Then someone told me that that is what they do and to just keep appealing it. So we reapplied and got turned down and appealed it all the way to a judge hearing and then she was finally approved so I say just keep appealing it and maybe you will have the same outcome. Hope this helps.

Here is a link to the changes made to SS Disability Blue Book Policy regarding BPI injury.

https://secure.ssa.gov/apps10/POMS.NSF/lnx/0424580030

Bring this to your local SS Office. It is a new policy because they (SSD) did not have a code for BPI.

Kath Robpi/adult
Member UBPN Board of Directors

Dustin's DVR caseworker told us to contact Senator Kohl. After he got involved Dustin was approved within weeks. Best of luck with this.
Sue

thank you for your reply, i have written senators, and congressman, and they keep telling me they have contacted the s.s. office and that congressional interest has been noted. but thats as far as i get. but i wont give up, i will keep trying, thanks for help. it cheered me up. angie m.

Did they send you the form to fill out? You fill it out and return it to the Senators office and they review and send to SS. Once the SS office has this form they have, I think, 30 days to respond in writing. You should get a copy and so should the senator, I know that the SS office doesn't like it but it worked for us. Although Dustin's caseworker couldn't say specifically that what we did was needed and a good idea she did applaud the effort as SS was dragging us along and hadn't made a decision in over 285 days.
Sue


Message was edited by: ptrefam