Trying Again - Brachial Plexus caused by viral infection
Trying Again - Brachial Plexus caused by viral infection
Hi I thought I would try again. In Aug 06 I had a viral infection that attacked my brachial plexus. I'm still in constant pain and although both arms were affected my left side is much worse. I have really no use of my left arm and my right is very limited. I am on pain medicine and lyrica and I do pt weekly. It's been so long the dr'ss told me 1-2 years and that it is very rare for this to happen. Lucky me!!!!!!!!! I am 40 yrs old married to a wonderful man and have 2 great kids!! I don't know where I would be without them. It's been so hard on all of us. I forgot how good reading the boards made me feel! So I will be a daily reader again. Thank you for listening. Gina from New Jersey
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Trying Again - Brachial Plexus caused by viral infection
Hi Gina
I'm glad that reading the boards help you.
It really helps to have people who understand your pain and sense of loss. I hope things get better for you soon.
Kath robpi/adult
I'm glad that reading the boards help you.
It really helps to have people who understand your pain and sense of loss. I hope things get better for you soon.
Kath robpi/adult
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Trying Again - Brachial Plexus caused by viral infection
Hi,
If you look on the board there is a mom who posted about her little boy who had the same thing happen.
http://ubpn.org/messageboard/thread ... tstart=105
good luck,
Marieke (31, LOBPI)
Message was edited by: marieke
If you look on the board there is a mom who posted about her little boy who had the same thing happen.
http://ubpn.org/messageboard/thread ... tstart=105
good luck,
Marieke (31, LOBPI)
Message was edited by: marieke
Re: Trying Again - Brachial Plexus caused by viral infection
Thank you - yes i've spoken with her. I was just trying again to see if there was someone new! Not that I would want that but because it's so uncommon would like to know more!
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marieke
- Posts: 1627
- Joined: Fri Apr 01, 2005 6:00 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008. - Location: Montreal, Qc, Canada
- Contact:
Re: Trying Again - Brachial Plexus caused by viral infection
Gina,
I know how you feel. I have a brachial plexus injury from birth BUT 3 years ago I got a cold and a week later I was paralyzed from the chest down. Same reason, a VIRUS! I now have a partially paralyzed left leg, partial paralysis of my torso muscles (stomach, muscles in the rib cage...).
Amazing what a little virus can do!
Good luck,
Marieke (31, LOBPI and Transverse Myelitis)
I know how you feel. I have a brachial plexus injury from birth BUT 3 years ago I got a cold and a week later I was paralyzed from the chest down. Same reason, a VIRUS! I now have a partially paralyzed left leg, partial paralysis of my torso muscles (stomach, muscles in the rib cage...).
Amazing what a little virus can do!
Good luck,
Marieke (31, LOBPI and Transverse Myelitis)
Re: Trying Again - Brachial Plexus caused by viral infection
MY NAME IS ANGIE.M. MY SON IS 43 AND HAS BRACHIAL PLEXUS IN HIS RIGHT HAND AND ARM. HE GOES THRU IV ANTIBIOTICTS, 5 DAYS A WEEK, HE IS NOW COMPLAINING THAT HIS LEGS ARE NUMB IS THIS USUAL FOR SOMETHING LIKE THIS TO HAPPEN, I THINK HIS DOCTOR IS GOING TO SEND HIM TO A SPECIALIST, I AM HOPING ITS NOT ANYTHING TO DO WITH BPI. YOUR IN MY PRAYERS, GOD BLESS.
ANGIE. M.
ANGIE. M.
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Drake's Mom
- Posts: 70
- Joined: Mon Jun 11, 2007 3:59 pm
Re: Trying Again - Brachial Plexus caused by viral infection
hi gina,
yes i have talked to you, but i haven't heard much back from you. i am still really confused as what to do about this. i have gotten the same answer from a few doctors~ "he is a rare puzzle we are trying to put together" i am here in rochester to see what the doctors here say. i would love to hear about your stoy and your doctors view on this and what your recover has been so far.
i hope to hear from you
Teresa
yes i have talked to you, but i haven't heard much back from you. i am still really confused as what to do about this. i have gotten the same answer from a few doctors~ "he is a rare puzzle we are trying to put together" i am here in rochester to see what the doctors here say. i would love to hear about your stoy and your doctors view on this and what your recover has been so far.
i hope to hear from you
Teresa