United Brachial Plexus Network, Inc.

Hi im alyssa im 10 i live in california and i have replyed to many people and no one is talking to me its like no one feels like im important what am i suposed to give out money or something no one ask me for money! just talk to me or give emails out so we can chit chat im looking mostly for chirldren 9-13 but parents can stil give me tips i have brachuial plexus on my left i can ride a bike skate eat corn on the cob fine. i do not have most problems other people have. i have one really goog freind on ubpn her nane is maia fitz her blog is around try to gind her she has a great mom who helps her at school explaining her class about the problem with her arm! her mom is francine. well i hope people will talk to me now. and give me tips about communicating to people about my arm!!!!!!!!!!!!!!!!!! reply soon people!!!!!!

you can email me mshatraw@aol.com i have been through this is my fourth year. i can answer any question from what i have learned/ there are many differing opinions about treatment and it makes this injury so hard. i feel your pain and will share my personal journey in private.

sorry i did not see you were ten, i hope you can find other kids your age to help you you can still ask me any thing you want sweety!

Alyssa,
WELCOME!!
Please Go to the Message Board for Adults and Teens with Obstetrical Brachial Plexus Injuries.It is on the "FORUMS LIST PAGE"too. There are teens and a few others like, Taylor, that are your age there.

You can get alot of questions answered there too about "How Do You Do....?"... things.

HUGS,
Carolyn J
LOBPI / age 69


Message was edited by: Carolyn J

Hi Alyssa!

Maia's mom here.... I'm so glad to see you posting on the message board! I knew you since you were a baby - that's how long your mom and I have been chatting on line! It's amazing to see you and Maia and Taylor and everyone else chatting together now. It's fantastic!! I hope that you guys stay in touch with each other and get to meet each other some day soon!

Big hugs to you,
francine

Hi Alyssa - I am a grandma to a little four year old girl with a LOBPI - I think you and her had triangle tilt about the same time! Hope you are having a fun summer and enjoying your time off school - Keep posting!! Camille B. (Kansas City)

Dear Alyssa,

I am sooo sorry that I forgot to tell you that you can email me anytime too!! scottcj98406@comcast.net

HUGS,
Carolyn J
Adult LOBPI age 69 [Wow!, huh!]
scottcj98406@comcast.net

Hi Alyssa,
I am Amy and I am 20 years old, I have a brachial plexus injury to my right arm. feel free to ask anything on these boards or you can email me too if you would rather do that. My email is hope16_05@yahoo.com just put something I can recognize in the subject line so I dont delete the message as spam mail.

Hope you are able to find some more people your age! Its great to see you posting!
Hugs,
Amy 20 years old ROBPI from MN

Hello Alyssa,

I am Rachel age 35 and live in Montana. I am glad that you are able to be online and ask questions about our type of injury. You sound like a very active girl and Maia is a great friend to have. It is very nice to meet you. Do you get to attend camp this year?

Dear Alyssa,

You got my attention!

I am sure that my 7 year old would love to be your friend. She loves to write letters. At this point my daughter has had only very limited access to the Internet. And I actually know very little about safe and age-appropriate places where you girls could communicate. But I am open for suggestions from you and your mom. Otherwise, with your mother's permission, you girls could become pen-pals. Just ask your mother to write to my UBPN email address, and we will make arrangements for a sharing of our addresses...

All the best, Alyssa,

dunloe