i'm a 22 years old man from egypt with OBI
i'm a 22 years old man from egypt with OBI
hello everyone my name is mostafa. i lived with OBPI all my life. when i was growing up there were no doctors her in egypt specialized in BPI. so many doctors have suggested wrong treatments. and when i was 2 years old i had an unsuccessful surgery. and since then my parents saw that the best treatment is physical therapy. although i have benefited alot from physical therapy(good arm strength and growth) my arms motion is limited, which has brought upon me many frustrations throughout my life. recently i started doing some research and i found this forum and i'm so glad i did. for the first time in my life i can tell my story to someone who can really understand. i don't know if some kind of reconstructive surgery will help me at my age but i'm searching. i'm thankful to any one who can help me out and maybe direct me where to look or give me some contact information for good doctors.
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hope16_05
- Posts: 1670
- Joined: Tue Jul 01, 2003 11:33 am
- Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
- Location: Minnesota
- Contact:
Re: i'm a 22 years old man from egypt with OBI
Welcome to the boards! It is nice to finally find people who understand. There is hope at any age, I am 20 and just had surgery for mr arm on Wednesday, May 30th. So I am not even a week out yet. I just wnted to point you to the medical resource directory http://ubpn.org/medicalresources/
There you can look under which ever country you want for information on doctors and therapists.
Good luck in finding a doctor!
Amy 20 years old ROBPI from MN
There you can look under which ever country you want for information on doctors and therapists.
Good luck in finding a doctor!
Amy 20 years old ROBPI from MN
Amy 28 years old ROBPI from MN
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: i'm a 22 years old man from egypt with OBI
Welcome,Mostafa!! to the UBPN Family. :^) I Just want to add that there are no dumb questions anywhere on any of the Message Forum Boards..and you are welcome to read & post on any of the Forum Boards. I have learn alot since April of 2004 when I found UBPN, and made many friends for Life here too!
Carolyn J
Adult/LOBPI
Message was edited by: Carolyn J
Carolyn J
Adult/LOBPI
Message was edited by: Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
Re: i'm a 22 years old man from egypt with OBI
Hello Mostafa , i'm Egyptian also live in Emirates , my son suffer from OBPI also he is 1.5 year now, he had nerve surgery when he was 6 months with the French Doctor Prof. Gilbert, he visits egypt regulary , he is the only one i can trust his opinion in Egypt .My son is improving thx God but still we have long wayyyyy .
You can email prof Gilbert he can help you and you will find his email in the medical resource directory here.If you want more information i'm here.
You can email prof Gilbert he can help you and you will find his email in the medical resource directory here.If you want more information i'm here.
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erik_olson
- Posts: 12
- Joined: Thu Mar 24, 2005 1:06 am
Re: i'm a 22 years old man from egypt with OBI
Hi Mostafa - keep searching and I hope you can be evaluated by a BPI specialist to see what options there are for you. I'm 36, last seen at age 9, and I was surprised to find now that many options are still available to me.
This might not be relevant, but, just today I briefly saw Dr. Hani Matloub, who is from Egypt and works at Medical College of Wisconsin since 1981 (Milwaukee, Wisconsin, USA)
This might not be relevant, but, just today I briefly saw Dr. Hani Matloub, who is from Egypt and works at Medical College of Wisconsin since 1981 (Milwaukee, Wisconsin, USA)