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horners syndrome
Posted: Mon Apr 30, 2007 3:35 am
by joseph
i am curious to know how common is it for obpi victims to also have horners. Does the presence of Horner's show that the damage to the nerves is severe? What nerve(s) are damaged in order for horners to be present? Sorry for all the questions but I was curious. My son has LOBPI and Horners syndrome.
Breonna, Joseph's mommy (8 months)
Re: horners syndrome
Posted: Mon Apr 30, 2007 11:23 am
by Mare
When Frankie was born he had horners syndrome the doctors all said it happens in severe cases of BPI Frankie had C5, C6, T1 and T8 pulled out of the spinal cord it got better and is now only evident in pictures.
hope this helps Mare
Re: horners syndrome
Posted: Tue May 01, 2007 9:58 am
by Kath
I have Horner's and found a baby picture where I could see it for the first time.
It usually shows up when I am tired.
The right side of my face has less wrinkles.
I guess it did not matter as a young adult because we don't have wrinkles then... LOL...
The most annoying thing about the Horner's is that my face and ear are always cold.
As a child and even now I must cover that side of my face if it's cold out and when I am sleeping.
I use to pull the covers over my head as a child and my Mother kept pulling them off.
It was not until I was much older that I realize only one side of my face was cold.
Kath robpi/adult