United Brachial Plexus Network, Inc.

He told me I have a severely frozen shoulder. I'm not a candidate for surgery and there isn't anything to be done but PT.

As for the accident he said it sounds like normal pain but couldn't confirm that for some of the neuro pain I was feeling. So we have no idea what to do next.

Again I come home severly frustrated and depressed.

Christina,
You need to be seen by a BPI Specialist.

HUGS,
Carolyn J

I'm working on it Carolyn. I have had my medical records sent and will be doing my videos this weekend.

Oh and that's to dr. nath

Kissy
I am so glad you will see a doctor who understands bpi.
It is so hard for us always trying to find any doctor, who will listen and truly understand our injury.
It seems as if we are dealing with doctors who have a preset text book notion of OBPI and never seem to update their understanding. They all seem to think it's rare and if we have other problems it has nothing to do with our initial injuries. Very frustrating at times and sometimes we just give up. Don't give up keep tying to find a doctor who will help.
good luck
Kath robpi/adult

Kissy, I fyou only knew how many doctors offices that aI have walked out of because they knew nothing aboaut BPI, and refused to learn anything about it. I had a doctor tell me recently that my son did not have a BPI, I was imagining things, what nerve, mind you Brandon has had two surgeries, YES, IDIOT, he has a BPI, you have to find a good doctor and stick with them. Good luck !!!GAYLE

Apparently my pcp doesn't think too much of the ortho. I went to see my pcp yesterday because my shoulder is getting worse from the accident. When I told him what the ortho said about the frozen shoulder he asked why I wasn't a candidate for surgery. I didn't know but he gave me a look and a scoff. He's sending me to pt and also trying to get me an e-stim machine for home and wants to see me next week. He said if it doesn't start working by then he wants me in for testing to make sure there is no damage to the muscles and ligaments. I'm still on muscle relaxers. Of course all of this is for the added pain I'm having due to the accident.

He doesn't know anything about bpis and admits it freely. He just doesn't know who to send me to for for it.

Kissy,
If you look in the Medical Resources there are several BPI specialists listed in your area. Or if you're interested in another just ask him to refer you to them. That is what we did with Dustin. Dustin's Dr also knew it was a BPI but freely admitted he didn't know how to treat it. He was very willing to write the referral when I told him I wanted Dustin to see the team at Mayo.
Sue

You are lucky in your regular Dr...at least he admits he doesn't know alot about it. That helps sooo much. The Dr. we had before in Houston was that way. It made so much difference because it meant he was open to at least listen when I came to him with problems. So often Drs. just scoff and tell me get used to it, or it is in my head or something. Once you are able to get in with a Dr who had BPI experience, your regular Dr will still be a great help, and sounds willing to learn from the whole situation.