Back from shriners
Posted: Fri Mar 09, 2007 3:54 pm
Well we are done. Frankie saw Dr Kozin today and he feels there is nothing more to be done for Frankie. As he so kindly put it both Frankie and I have to come to terms with the fact that frankie has a very bad injury that can't be fixed. He said he was surprised that we went ahead and had the Mod Quad done since when we saw him in 2003 he was against it. He was glad that Frankie felt it helped him pain wise and feeling looser but he didn't see a difference in function which I don't get because there is a lot more function and even measurement wise there is a difference from when he measured him last in 2003.
He also said there is nothing to be done for the elbow that the dislocation can not be corrected and that serial casting like Dr Cornwall suggested would only cause problems due to boney growth. He also said that turning the hand palm down (Dr Cornwalls suggests)would take away Frankies use of the hand since he has little feeling he relys on visual to tell him when to grasp. With the palm down this would be taken away and he said he sees it in older kids that have had this done they stop using the hand altogether. He did say frankie must start wearing an elbow splint a few nights a week to help the elbow from further contracting and the mod quad splint should be wore 1x a week to keep the muscles loose and prevent contractures from coming back in the shoulder. Frankie feels disappointed but in a way relieved now he says he can go back to the way he was before Nov 9th 2006 a normal kid. He said he is glad he had the Mod Quad but sick of all the doctors saying different stuff and not knowing who to trust. I personally am sad but also relieved to get back to normal. I must say it did tick me off the way Dr Kozin said that Frankie and I have to face the fact that he can't be fixed. No one has excepted this more then Frankie and I his last surgery before the mod quad in 2006 was in 1995 and when we saw Dr Kozin in 2003 it was not for surgical advice but for pain in the wrist. I truly don't remember his discussing the mod quad with us and in 2003 Frankie was still dead set against any further surgeries he did not change his mind until spring of 2006 when we started looking into the Mod Quad.He also felt that the surgeries that Dr Nath wanted to do on Frankie were for cosmetic purposes only and that no function would be gained. I am greatful to be getting away from all this and maybe in the years to come there will be something that can be done but who knows by then Frankie my not be interested having once again found peace with himself. Mare
He also said there is nothing to be done for the elbow that the dislocation can not be corrected and that serial casting like Dr Cornwall suggested would only cause problems due to boney growth. He also said that turning the hand palm down (Dr Cornwalls suggests)would take away Frankies use of the hand since he has little feeling he relys on visual to tell him when to grasp. With the palm down this would be taken away and he said he sees it in older kids that have had this done they stop using the hand altogether. He did say frankie must start wearing an elbow splint a few nights a week to help the elbow from further contracting and the mod quad splint should be wore 1x a week to keep the muscles loose and prevent contractures from coming back in the shoulder. Frankie feels disappointed but in a way relieved now he says he can go back to the way he was before Nov 9th 2006 a normal kid. He said he is glad he had the Mod Quad but sick of all the doctors saying different stuff and not knowing who to trust. I personally am sad but also relieved to get back to normal. I must say it did tick me off the way Dr Kozin said that Frankie and I have to face the fact that he can't be fixed. No one has excepted this more then Frankie and I his last surgery before the mod quad in 2006 was in 1995 and when we saw Dr Kozin in 2003 it was not for surgical advice but for pain in the wrist. I truly don't remember his discussing the mod quad with us and in 2003 Frankie was still dead set against any further surgeries he did not change his mind until spring of 2006 when we started looking into the Mod Quad.He also felt that the surgeries that Dr Nath wanted to do on Frankie were for cosmetic purposes only and that no function would be gained. I am greatful to be getting away from all this and maybe in the years to come there will be something that can be done but who knows by then Frankie my not be interested having once again found peace with himself. Mare