SUPPORT GROUPS

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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jeremyl2906
Posts: 5
Joined: Tue Feb 20, 2007 5:22 pm

SUPPORT GROUPS

Post by jeremyl2906 »

DOES ANY KNOW IF THERE ARE ANY SUPPORT GROUPS IN MADISON WISCONSIN.


IF YOU DO PLEASE LET ME KNOW.
claudia
Posts: 1241
Joined: Tue Nov 06, 2001 12:21 pm

Re: SUPPORT GROUPS

Post by claudia »

Jeremy:
I don't know of a support group in Wisconsin. However, I can help you set one up, if you'd like.

I encourage you to look on our Registry for other Wisconsin-ites. I also encourage you to Register as well.

If there is a group in Wisconsin, please email me, so I can tell others if they ask.

thanks,
claudia
claudia@ubpn.org
within reach, chair
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brandonsmom
Posts: 1401
Joined: Mon Nov 22, 2004 4:43 pm

Re: SUPPORT GROUPS

Post by brandonsmom »

I think there is a support group !!! Isn't that the one that Brenda heads up? I think her username is Brenda333? Help me someone, I can't think of her name

GAYLE
ptrefam
Posts: 674
Joined: Fri Jan 06, 2006 5:19 pm

Re: SUPPORT GROUPS

Post by ptrefam »

Yes it is Brenda. It's based in Larsen WI.
Sue
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brandonsmom
Posts: 1401
Joined: Mon Nov 22, 2004 4:43 pm

Re: SUPPORT GROUPS

Post by brandonsmom »

Thank you Sue, I Was at a loss !!! GAYLE
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Brenda333
Posts: 217
Joined: Mon Nov 18, 2002 6:59 pm
Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
--
Location: Wisconsin
Contact:

Re: SUPPORT GROUPS

Post by Brenda333 »

Yes there is a Support Group in Wisconsin. Its called Wisconsin BPI Connection. It is a small group, but we did get a chance to have a family gathering last year at the Wisconsin Dells. We had a great time.

You can contact me at the following info:
Brenda Copeland-Moore
Wisconsin BPI Connection
P.O. Box 23
Larsen, WI 54947
920-836-3843
erbspalsy@usa.net
http://www.freewebs.com/wbpic
Brenda
BPI Connection
http://www.freewebs.com/wbpic
claudia
Posts: 1241
Joined: Tue Nov 06, 2001 12:21 pm

Re: SUPPORT GROUPS

Post by claudia »

Ooops!! Brenda!

I am having a my-kids-are-out-of-school moment. I didn't mean to forget you.

you do a great job,
claudia
jeremyl2906
Posts: 5
Joined: Tue Feb 20, 2007 5:22 pm

Re: SUPPORT GROUPS

Post by jeremyl2906 »

THANK YOU EVERYONE.
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