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Participate in new study of pain and fatigue in adults w/SCI - earn $25

Posted: Mon Dec 18, 2006 10:25 pm
by Christopher
I haven't contacted these folks yet, but I'd imagine that they would want BPI injuries to be included in this study since those with nerve avulsions are kind of in between a spinal cord injury and a peripheral nerve injury. Anyway, I'll post more when I find out more.

Happy Spunky & Pain Free Holidays!!!
Christopher


http://uwcorr.washington.edu/
http://uwcorr.washington.edu/adult_recruitment.htm
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NOW RECRUITING!
Announcing a new study of pain and fatigue in adults with multiple sclerosis and spinal cord injury.

PURPOSE

Pain and fatigue are the most common symptoms reported by people living with multiple sclerosis (MS) and spinal cord injury (SCI). They interfere with employment, enjoyment of life and participation in important activities. Both symptoms can be treated with a variety of approaches, but we have a long way to go before we can say with confidence that pain and fatigue can be effectively treated.

It may be surprising to you, but rehabilitation professionals don't know much about who is likely to develop pain, to respond to medications, and what to expect in the long term when a person develops pain and/or fatigue. The most fundamental requirement for increasing our knowledge and developing effective treatments is availability of reliable, sensitive, and meaningful ways of measuring pain and fatigue, and their effects on day-to-day functioning. New statistical methods have become available that make constructing better scales much easier. We would like to utilize these new methods to improve measurement of pain and fatigue in people with MS and SCI.

RESEARCH ACTIVITIES

If you decide to participate in this study, we will ask you to fill out a survey that we will mail to you. This survey will ask you about your experience with pain, fatigue, sleep, participation in daily activities, your social support, and general mood and outlook. The survey will also ask for some basic demographic information, such as your age, gender, and education. The survey will take about one and a half hours to complete. You will then mail the completed survey back to us. Once we have received your completed survey, you will receive a check for $25 for your time and effort.

Participating in this research is completely voluntary. You may decide not to participate in this study, and you may withdraw from the study at any time. Your decision to withdraw will not affect your health care in any way. There are no penalties or loss of benefits if you choose not to take part in the study or if you decide to withdraw early.

more.....

Re: Participate in new study of pain and fatigue in adults w/SCI - earn $25

Posted: Tue Dec 19, 2006 3:06 pm
by Kath
Christopher
I contacted them this morning and received a prompt reply.
They will be sending me the forms shortly.
I have two relatives with MS and I will forward this information so that they can participate.
thanks
Kath (adult/robpi)

Re: Participate in new study of pain and fatigue in adults w/SCI - earn $25

Posted: Tue Dec 19, 2006 3:09 pm
by marieke
Think they'll take a Canadian?? I have TM which is a SPI and related to MS... I should email them and see...
Marieke