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a little update and a question

Posted: Mon Oct 02, 2006 5:01 pm
by hope16_05
I started thereapy at my college again a couple weeks ago. Today was my third time going. Anyway we decided that this year we would try and do all sorts of tests to try and figure out which of my nerves are damaged. So today my therapist was doing hot/cold sensation tests on my hand and arm and what we found kinda scares me a little.

When my therapist was doing the testing I had to keep my eyes closed and she was putting the hot thing on my arm to test where I can feel hot, the only problem was that it felt cold to me. Then when she used the cold one that felt cold too. So I can feel but I have a hard time feeling hot. Does any one else have that?

Man is my sensation screwed up! Hot should not be cold, no wonder I burn my arm no matter how careful I try to be. It amazes me what I find out during my therapy sessions. Always something new.

I guess I was just wondering if any one else had sensation stuff like that.

Hugs,
Amy 19 ROBPI from MN

Re: a little update and a question

Posted: Mon Oct 02, 2006 7:56 pm
by Andrea53
I have a similar problem.My left lower arm and hand have some sensation but it does not feel hot.My hand always have burn marks.The worst is seeing a blister a few hours later.The upside is I can wash dishes in really hot water.lol
Please be careful because not feeling hot,you may burn and also the sight can get infected.
I'm 53 and always had this.Glad you found out so soon and have a wonderful therapist to get those good muscles strong.
God Bless
Andrea

Re: a little update and a question

Posted: Mon Oct 02, 2006 8:25 pm
by hope16_05
Thanks Andrea,
I have always been pretty careful because I have no feeling at all in my pinky finger and the bottom of my hand (the ulnar nerve area). So I have to watch what I do very carefully. I just thought it was interesting that I would feel hot as cold and cold as cold. Very weird!

Thanks again,
Amy

Re: a little update and a question

Posted: Mon Oct 02, 2006 9:19 pm
by marieke
Amy,
Since I got TM my leg is like that too on the right leg. Weird huh? Parts of my left arm feel cold as pain more than just cold.
Marieke (LOBPI)

Re: a little update and a question

Posted: Mon Oct 02, 2006 9:42 pm
by Kath
Amy
I can't feel hot either on my forearm and parts of my hand,shoulder, neck and face.
My arm feels cold most of the time and if it is cold out my cold arm is in pain.
I have to wrap my arm in something warm when I am just sitting around because it is painful when it gets very cold.

It's crazy but I did not realize how different my both arms were for many years but know my right side was always freezing.
My right leg is colder and thinner.
My PT said my right leg is shorter and my hip higher on the right...
Kath (adult/robpi)

Re: a little update and a question

Posted: Tue Oct 03, 2006 6:37 am
by kamren
I have never notice one way or the other with my BPI arm, but I do know I get sunburned more easily on my left, and that I often have pretty bad bruises that I have no idea where I got them.

I also have numbing on my left pinky and right below my pinky on my hand all the way to the wrist. I never considered that it was BPI related though.

Re: a little update and a question

Posted: Tue Oct 03, 2006 11:01 am
by Carolyn J
Hi Amy,
I've got hot/cold issues too on my LOBPI side arm, leg and ESPECIALLY left hand. My hand is something I struggle with everytime I go outside in gold weather. I also sunburn sooo easily & quickly on that side.

Hugs & have a good day today,
Carolyn J