a MIRACLE...

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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Paula
Posts: 699
Joined: Wed Jan 09, 2002 11:52 pm

a MIRACLE...

Post by Paula »

Those that know us, know that Aaron has never had any movement past/higher than his mouth. He is touching the top of his head!!!!! Guys this is his 4th surgery and it has given him in 1 week out of cast, more than the other 3 have given him in his 5 yrs!!!! I 1st had him touch is mouth and he did very easy then so i had him try his nose then his eye and then the top of his head and he did very very easy. I cried so much and i think i still havent stopped. Aaron had to look down to get something in his mouth using lefty before surgery and now...wow I just can't get over it. HE HAS OVERHEAD!!!! I want to go outside and shout it but i will probably get arrested LOL. I think you guys would be the only ones to really understand. I LOVE SHRINERS and what they have done for my son!!!
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Tanya in NY
Posts: 935
Joined: Mon May 03, 2004 10:51 am
Injury Description, Date, extent, surgical intervention etc: I am Mom to Amber, injured at birth. I serve on the Board of Directors for UBPN, and am a labor/delivery nurse, too.
Location: NY State
Contact:
Contact Tanya in NY

Re: a MIRACLE...

Post by Tanya in NY »

This is such wonderful news Paula! Way to go Aaron! Yeah!!!

Thank you so much for sharing this great news!

Tanya in NY
Amber's Mom, ROBPI, almost 4 years old
Tanya in NY
Amber's Mom, ROBPI, 13 years old
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ptrefam
Posts: 674
Joined: Fri Jan 06, 2006 5:19 pm

Re: a MIRACLE...

Post by ptrefam »

WOOWHOOOOO!!! That's my best internet shout. Congratulations!! I get so excited about little changes in movement and this sounds wonderful.
Sue
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Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: a MIRACLE...

Post by Kath »

You can do the big happy dance for Aaron.
You both must be so excited and happy.

Wait till you see all the other things he can do now!

I love hearing such good news!

Kath(adult/robpi)
Kath robpi/adult

Kathleen Mallozzi
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hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:
Contact hope16_05

Re: a MIRACLE...

Post by hope16_05 »

Paula,
Thats so amazing!!! Way to go Aaron! You keep your momma proud now and show her all the cool things you can do!

Shriners are amazing arent they? They gave me every thing I have, I couldnt be more appreciative. They are wonderful!

Hugs,
Amy 19 ROBPI from MN
Amy 28 years old ROBPI from MN
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Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:
Contact Carolyn J

Re: a MIRACLE...

Post by Carolyn J »

WHOOOOWHO!!! from me too! I am DOING my Happy Dance for AARON. Congratulations MOM too. Let's all celebrate and have a Pots & Pans Parade around the house.[My personal favorite to celegrate MIlestones.]
HUGS,HUGS HUGS,
UBPN Granny Carolyn J
Adult LOBPI
PS ...having no "Grands" of my own, everyone here at UBPN are Mine!!!


Message was edited by: Carolyn J


Message was edited by: Carolyn J
Carolyn J
Adult LOBPI
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admin
Site Admin
Posts: 19873
Joined: Mon Nov 16, 2009 9:59 pm

Re: a MIRACLE...

Post by admin »

great news! what surgery did he have?
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Paula
Posts: 699
Joined: Wed Jan 09, 2002 11:52 pm

Re: a MIRACLE...

Post by Paula »

Aaron had the anterior capsule release at Shriners in Houston with Dr Gloria Gogola. She is WONDERFUL and is my new BFF lol. Thanks everyone. I had only dreamt of these wonderful new moves of his and now they are real. God knows I've waited sooo long for this to happen.
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Joanie
Posts: 499
Joined: Sat Aug 13, 2005 9:03 am

Re: a MIRACLE...

Post by Joanie »

I can picture Carolyn doing her happy dance, but I'm too self-conscious to join in the dance. I'm just sitting on the sidelines cheering on everyone else. Congratulations!!

Joanie
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Amy
Posts: 28
Joined: Wed Aug 30, 2006 6:19 pm

Re: a MIRACLE...

Post by Amy »

That is so wonderful! Thank you for sharing the great news, it sure does give me more hope!
Many Blessings to you and your family!

Amy
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