I met up with Melanie and her mom tonight... they are two doors down from me! hahaha... I will let you all know what we find out here....
Courtney
at Mayo...
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cbe411
- Posts: 1393
- Joined: Sun Jun 01, 2003 8:27 pm
- Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
- Location: Grosse Pointe Woods, MI
- Contact:
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hope16_05
- Posts: 1670
- Joined: Tue Jul 01, 2003 11:33 am
- Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
- Location: Minnesota
- Contact:
Re: at Mayo...
Good luck Court. I hope you get good news at your appointment! I only wish I could meet up with you since I am only 2 and a half hours away 
Amy 19 ROBPI from MN
Amy 19 ROBPI from MN
Amy 28 years old ROBPI from MN
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Karen McClune
- Posts: 746
- Joined: Wed Sep 10, 2003 4:58 pm
Re: at Mayo...
Courtney,
This is really great that Melanie is so close to you.
Hoping for good news.
Hugs, Karen
This is really great that Melanie is so close to you.
Hoping for good news.
Hugs, Karen
Re: at Mayo...
Court, KEEP US POSTED!!! And say 'hey' to the gang up there from John's family. I'm so glad your appt date has finally arrived.
Take care,
Ellen
Take care,
Ellen
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: at Mayo...
Good Luck with your visit with the doctors. I hope you get some good news.
I'm glad you met up with Melanie and you can support each other.
Kath ( adult/robpi)
I'm glad you met up with Melanie and you can support each other.
Kath ( adult/robpi)
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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catchatrain
- Posts: 49
- Joined: Sat Mar 11, 2006 2:33 pm
Re: at Mayo...
Good luck Courtney!!!=).
Marshall
Marshall
Re: at Mayo...
So, Courtney...??????
How did it go? Or should I say, how is it going? I don't remember how many days you are staying.
Ellen
How did it go? Or should I say, how is it going? I don't remember how many days you are staying.
Ellen
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cbe411
- Posts: 1393
- Joined: Sun Jun 01, 2003 8:27 pm
- Injury Description, Date, extent, surgical intervention etc: MVA in 2001, nerve graph in 2002, Median Nerve Transfer in 2004 and an unsuccessful Gracillis Muscle Transfer in 2006. I am living life and loving it! Feel free to contact me :)
- Location: Grosse Pointe Woods, MI
- Contact:
Re: at Mayo...
Hey guys... thanks for all the well wishes! The appointment went as I expected... they suggested the gracilils transfer... I need to processeverything and really decide what it is that I want to do... I will tell you that I do not like the idea of having pubic hair on my arm, but I guess after a year I can have it removed! haha They are ready for me when I am ready... SCARY! I have checked out a few different places and still have to decied where to go to... ughhh! I htink I know what I am going to do but Im not jumping the gun, I did that with my first two ops... thanks for checking on me...
Courtney
Courtney
Re: at Mayo...
Hey girl - glad the visit went so well!
Regarding that skin flap, they just use it the first couple days to monitor the muscle transfer / blood flow & make sure they know where the dopplar needs to be placed to check it all out. We had a plastic surgeon remove it from John's shoulder after that... I agree, it can be pretty funky looking!
Let us know what you decide. The good thing about a gracilis transfer is that you don't have to feel so rushed to make a decision.
Take care,
Ellen
Regarding that skin flap, they just use it the first couple days to monitor the muscle transfer / blood flow & make sure they know where the dopplar needs to be placed to check it all out. We had a plastic surgeon remove it from John's shoulder after that... I agree, it can be pretty funky looking!
Let us know what you decide. The good thing about a gracilis transfer is that you don't have to feel so rushed to make a decision.
Take care,
Ellen
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Christopher
- Posts: 845
- Joined: Wed Jun 18, 2003 10:09 pm
- Injury Description, Date, extent, surgical intervention etc: Date of Injury: 12/15/02
Level of Injury:
-dominant side C5, C6, & C7 avulsed. C8 & T1 stretched & crushed
BPI Related Surgeries:
-2 Intercostal nerves grafted to Biceps muscle,
-Free-Gracilis muscle transfer to Biceps Region innervated with 2 Intercostal nerves grafts.
-2 Sural nerves harvested from both Calves for nerve grafting.
-Partial Ulnar nerve grafted to Long Triceps.
-Uninjured C7 Hemi-Contralateral cross-over to Deltoid muscle.
-Wrist flexor tendon transfer to middle, ring, & pinky finger extensors.
Surgical medical facility:
Brachial Plexus Clinic at The Mayo Clinic, Rochester MN
(all surgeries successful)
"Do what you can, with what you have, where you are."
~Theodore Roosevelt - Location: Los Angeles, California USA
Re: at Mayo...
Courtney,
If you go for the muscle transfer with the bonus skin flap feature and choose to have it removed and you want to keep it in the end... you have to tell them it is against your religion to discard it and then they must save it for you! I had mine removed during a tune up/tweeking surgery a few weeks ago and literally begged them to keep mine (I wanted to make a coin purse or eye patch or anything fun and stupid with it, as it would be the first fun thing this injury has brought my way... but plenty stupid!) but they tossed it in the trash instead! My own flesh and blood, I guess it's gross to some, but I miss every part I lose. I guess they want to bury the dead and not send them to the taxidermist, oh well... guess I should finally put grandma and grandpa in their pine boxes six feet under.
If you go for the muscle transfer with the bonus skin flap feature and choose to have it removed and you want to keep it in the end... you have to tell them it is against your religion to discard it and then they must save it for you! I had mine removed during a tune up/tweeking surgery a few weeks ago and literally begged them to keep mine (I wanted to make a coin purse or eye patch or anything fun and stupid with it, as it would be the first fun thing this injury has brought my way... but plenty stupid!) but they tossed it in the trash instead! My own flesh and blood, I guess it's gross to some, but I miss every part I lose. I guess they want to bury the dead and not send them to the taxidermist, oh well... guess I should finally put grandma and grandpa in their pine boxes six feet under.