United Brachial Plexus Network, Inc.

I was speaking with Kath Mallozzi yesterday on the phone and asked her if she also, like me, had problems with her teeth aching and pulsating. She said she did, so I thought I would also ask here to see if this is just an isolated problem the two of us have or if other obpi's have it too.

Here's the situation.
Especially after coming in from the cold and getting warm, my teeth (all of them) begin to throb and ache. It is so painful that it can keep me awake at night. It usually lasts for a couple of hours.

I don't use ice in my drinks -- the cold can bring this on too.

When I am around smoke or loud noise, this also can bring it on.

My dentist said he had never heard of such a thing.

Anybody else experience this? Is it tied to the sympathetic nerve system that was affected by our injuries?

Nancy

That is really interesting how many things are involved with a brachial plexus injury. You think it is just the arm and neck and it becomes some many other issues. What does the sympathetic nerve system affect from a brachial plexus injury. My daughter gets very red and hot on the right side of her face when she eats certain foods and she is a robpi, she is 8 and it has been happing since she is little. I am wondering if you teeth hurt you when you were little or just as an adult? With by daughter I asked the doctors about her red face and they said that they never heard of it but I must tell you this injury is so frustrating because everyone is so different and I really think it has to do with her robpi!!!!!

Hello All....It makes sense to me,having weird painful stuff happening ANYWHERE in our body; after all,in each individual with OBPI injuries, WHICHEVER nerves were damaged grew screwy and who knows WHERE each screwy nerve went,how MUCH each grew wherever, or if it did at all. After all, these damanged nerves are not dead, but grew screwy/in weird ways. Anyway, that's my 2 cents...ALSO, no wonder Doctors haven't heard of such strange things happening to us..DUH! there has been No Reasearch/No Documentation ANYWHERE!
Hugs for Everybody,
Carolyn J