I'm preparing an article for the next Outreach about things that we have found we can't live without. I know we have all shared from time to time about products we have found that help us live a better life.
If you'd like to participate in the article, please email me (nancy@ubpn.org) with your idea(s). I can either attribute your quote to you or we can do it anonymously.
Nancy Birk
UBPN President
Your favorite things
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Your favorite things
Hi Nancy,
I cannot live WITHOUT: 1) MY Handicapped Parking Card for our car AND 2) my rubber, or soft & furry Balls of the "right size(depending on level of contracture Pain)for my LBPI Hand[I call it my "Iron Claw"because it gets so tight I cannot get it to release]..oh, and 3)Depends when I travel or have a long day away from home...LOL!! I am no longer too proud...LOL
Hugs all around,
Carolyn J
I cannot live WITHOUT: 1) MY Handicapped Parking Card for our car AND 2) my rubber, or soft & furry Balls of the "right size(depending on level of contracture Pain)for my LBPI Hand[I call it my "Iron Claw"because it gets so tight I cannot get it to release]..oh, and 3)Depends when I travel or have a long day away from home...LOL!! I am no longer too proud...LOL
Hugs all around,
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
Re: Your favorite things
I'm not the BPI, but I would say (if it were me) SUPPORT is the thing I wouldn't want to live without.
Emma isn't in the right frame of mind to ask this question at the moment; she's got a girlfriend over and they are being oh so silly, so... maybe later on after her friend goes home I'll ask her.
Emma isn't in the right frame of mind to ask this question at the moment; she's got a girlfriend over and they are being oh so silly, so... maybe later on after her friend goes home I'll ask her.
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rachelcasa
- Posts: 729
- Joined: Mon Apr 21, 2003 11:45 pm
Re: Your favorite things
I recently purchased a rock. *L* Yes, a replica of a rock made out of clay. It is a rock you can heat up like a tea bag. It has different points for different areas of your body. I can use my good arm and reach around to the shoulder area of my poor arm and massage it. It sounds funny but I honestly cannot live with out it anymore. If anyone is interested in a rock let me know. I'll have to dig out the website of the gal who makes them.
Perhaps I'm a goofball...but the rock rocks!!
Perhaps I'm a goofball...but the rock rocks!!
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Kath
- Posts: 3242
- Joined: Mon Nov 18, 2002 4:11 pm
- Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
- Location: New York
Re: Your favorite things
Rachel
I love that line - " I have to dig out the website"
LOL...
Send it to me please I am always looking for something to warm my bpi arm.
Kath ( adult/robpi)
I love that line - " I have to dig out the website"
LOL...
Send it to me please I am always looking for something to warm my bpi arm.
Kath ( adult/robpi)
Kath robpi/adult
Kathleen Mallozzi
Kathleen Mallozzi
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Carolyn J
- Posts: 3424
- Joined: Tue Apr 06, 2004 1:22 pm
- Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.
My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!
I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too. - Location: Tacoma WA
- Contact:
Re: Your favorite things
Rachel,
I want to have a rock to,so start "digging" for the web site.
Hugs,
Carolyn J
I want to have a rock to,so start "digging" for the web site.
Hugs,
Carolyn J
Carolyn J
Adult LOBPI
Adult LOBPI
Re: Your favorite things
I suddenly see a picture of the Seven Dwarfs running around in your computer trying to dig up the site for all of us!
Wow, I really need to check my meds!
Hi, ho hi ho it's off to work I go....
Wow, I really need to check my meds!
Hi, ho hi ho it's off to work I go....
Joy in FL is now living in Georgia!
Left TBI on October 31, 1991
Left TBI on October 31, 1991
Re: Your favorite things
Sorry it is HEIGH HO. You know us BP people we can't spell! 
Joy in FL is now living in Georgia!
Left TBI on October 31, 1991
Left TBI on October 31, 1991
Re: Your favorite things
Bumping this up again.
I'm putting the article together now, so, this is a 'last call'. Come on and share what you've found works for you and makes living with a bpi just a little bit easier.
You can email to me directly (nancy@ubpn.org) or post here. Be sure to let me know how you want your name published.
Nancy Birk
UBPN President
I'm putting the article together now, so, this is a 'last call'. Come on and share what you've found works for you and makes living with a bpi just a little bit easier.
You can email to me directly (nancy@ubpn.org) or post here. Be sure to let me know how you want your name published.
Nancy Birk
UBPN President